Flare ups around menstrual cycle

[Niki318]

Does anyone experience a flare up right before menstrual cycles? Lately this has been happening and my doctors cannot figure out why.

[jzeis]

Hi Niki318,

Yup, nearly all of my worst BD flares happened around my period every month. On the plus side, now that I've gone through menopause, my BD has gone quiet -- yayyy! It doesn't happen for every woman, unfortunately, but maybe it will give you some hope (I got my first BD symptoms when I was 23, and I'm 63 now.)

Here's a 2018 article from a medical conference. It's called:

"AB1163  My behcet’s disease and my menstruation cycle: observation from an irish cohort"

You can find it here for free: ard.bmj.com/content/77/Supp...

Hope that helps,

Joanne Z.

[Niki318 in reply to jzeis]

Thank you so much!

This helps me a lot! I also got diagnosed at 23, I am 25 now and still trying to learn the ins and outs of Behçet’s disease!

[lynnpru]

Yep. Totally linked for me too. I've been told by Behcets clinic here in UK menopause may well sort me too...

[GloomyEeyore]

Yes! Spoke to my rheumy about this at my list appointment. She told me that it was to do with hormones. No advice on how to deal with it though.

[Hidden]

Same here . Might be worth asking about progesterone only mini pill it’s been excellent and successfully stopped symptoms.

[Lucets]

Yes I get the worst vaginal sores around my period and once I was so sick I guess from the stress of being sick for so long I didn’t get my period for a month and a half

[SCMW]

Yes - I posted something similar and it was unanimous that symptoms are worse in relation to hormonal cycles.

[indigogata]

My Grandmother confirmed that, late in life. I took Depo-Provera shots for almost a decade until I was showing symptoms of bone loss. I have had a Mirena IUD for a few years, which cuts down on my hormones, but at 46, I spot every few days plus a short period.