Hip and Spine Pain : So I am finally off of the... - Behçet's UK

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Hip and Spine Pain

Stm252 profile image
9 Replies

So I am finally off of the prednisone after a year and a half! Woo. Many of you have heard the plight. Anyhow...once off of it, it appears severe hip pain and spine pain was being masked. The question is....could this be a new disease? Could prednisone really have been masking this, the entire time? Not sure how to proceed from here. My gut instinct is to request an MRI of my hip and spine to see what actually is happening. Thoughts?

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Stm252
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cpops profile image
cpops

A side effect of Steroids is Osteoporosis especially after having taken it for so long?

Stm252 profile image
Stm252 in reply to cpops

Is this how it would feel? So at time 2 of my DEXA I was already in osteopenia. They are planning to check again in November to see where I am at. I could request to check earlier?

cpops profile image
cpops in reply to Stm252

Yes it causes damage to the vertebrae hence the pain in your spine.

Stm252 profile image
Stm252 in reply to cpops

Yikes. This isnt good....

I think information is always a good thing. If you have MRI you will know what is wrong and potentially what can help.

Amy-Tenacious1 profile image
Amy-Tenacious1

Not necessarily. I've had spine pain since my teens. It just seems to have been sliding down: first my neck, then between my shoulder blades, then the lower back and now I'm down to my hip and tailbone. Every phase seems to have gone through an active phase and then going inactive while slinking down to the next part. What makes it interesting, though, is that every segment is something else: I got MRI's done myself, because docs weren't interested. The neck joints have spondylitis, between the blades I have mild scoliosis with osteoarthritis, my three lower joints have prolapses and I have no idea what's going on below that other than some sort of inflammation. My guess is cartilage inflammation between the SI-joint (because it seems to be in place, but still burns) and between my tailbone and spine. The inflammation in time turns to something else. But I have a sneaky feeling that steroids can mask some of the damage going on through little by little while keeping inflammation some how in check.

Stm252 profile image
Stm252 in reply to Amy-Tenacious1

Thanks for this detailed response. I am going to request an MRI in addition to the DEXA

Ashveer profile image
Ashveer

Hi; please do consult your doctor, but from what I have learned as caregiver for my son, same predinsone, Vitamin K2 found in Japan diet is very excellent found in Japan diet, called Natto Fermented Beans...Vit. K2 is the vitamin that also acts as Harmone, our diet lacks this, as it is produced in animal organs, ie. beef liver, goose liver, but fortunately, eating one pacakge of nato beans, will pervent bone loss, the studies show that japan population has very success rate for hip/bone problems, compare to rest of the world....The smooth cells of behcets blood vessels and endtholial (sp?) cells become damged, vit. K2 will repair these...please study/reasearch Natto Beans Diet, my son is on it now.....include this in your daily diet, diffcult to eat but very life saving, the Natto Beans...good luck, and best wishes for you...

Stm252 profile image
Stm252 in reply to Ashveer

Thanks so much for the idea. I will look into this!!

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