Painful legs : Hi , I was just wondering whether... - Behçet's UK

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Painful legs

8 Replies

Hi , I was just wondering whether anyone else was experiencing a lot of pain when standing , also if I haven't got thick fluffy socks on my feet hurt so much . I would be grateful for any advice .big hugs to everyone x

8 Replies
Stm252 profile image
Stm252

Hi there. My heels are constantly red and swollen and sore. So I have to also wear big fluffy socks or I am uncomfortable. But my legs don't hurt per se all the time. The muscles ache here and there depending on how bad my knee joint pain is.

SCMW profile image
SCMW

Hi, yes I do, I often feel like the soles of my feet are slightly swollen or bruised. I have had pain in the buttocks & my legs giving way unable to weight bear. My joint pain has reduced greatly since taking colchicine and physio & hydro has been beneficial. I’ve also had times when my calves have felt swollen particularly noticeable when driving. I find the soles of the feet problematic clutch changing etc when they are up. I have worn soft socks also, flat shoes and staying warm helps. Best wishes

lovenothate profile image
lovenothate

Hi Scruffymouse,

Apart from sore joints in my hands, knees and feet, the first big pains I suffered with started in my legs. My calf muscles would go in to spasm when I walked a certain distance and that distance gradually decreased over time. I was eventually told I had nerve damage in my legs and gradually lost the use of them. But mine is a severe case and unusual.

I hope you find the cause of yours and are able to get some relief soon.

All the best,

Will 🙂

Thank you all for your advice , I have been told I have peripheral nerve damage as well , I have tried most drugs lol. Starting Humira tomorrow so fingers crossed , I was a nurse but unfortunately been on long term sick for a year . Only put the shopping away yesterday , been awake all night in pain and can't walk this morning , xxx

OpsDave70 profile image
OpsDave70

Yes, I do have painful legs but the combination of Humira, Methotrexate and Plaquenil have all helped reduce the pain from severe down to tolerable. I can only wear ankle socks. Anything higher causes sheer agony!

Jaxxi profile image
Jaxxi

I was having a hard time walking, and colchicine helped. I had to stop it though, due to stomach issues. I am now on hyroxychloroquine and that helps a lot too. When my feet were bad I took to wearing running shoes with squishy insoles. I rarely wear anything else now: if I do wear ordinary shoes I put a running shoe insole in.

sian35 profile image
sian35

Running insoles a good idea. I hadn’t thought of that!

Jaxxi profile image
Jaxxi in reply tosian35

I tried on loads of pairs until I found a particular running shoe that fitted perfectly - in my case, the Nike Pegasus. Because runners demand consistency in their shoes, they update the range but the fit stays the same. I have a collection in different colours, and when the trainer wears out, I keep the insole for use in winter boots etc. When I try on ‘dressy’ shoes I take the Pegasus insoles with me to make sure they go together.

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