My skin is dreadful at the moment but, once again, none of the medics seem really interested. Having said that, at the moment I am 'breaking in' a new rheumy so I need to be fair to him, he's got 5 years of history to deal with! I think too that, in the grand scheme of things, the skin problems are seen as relatively minor.
I started off a couple of years ago with lesions on my chest - hard lumpy spotty things, always in the midline (GP pointed that one out!). Then there was a dreadful episode when I had a nasty rash beneath my breasts. I treated it as thrush - which it wasn't; my GP treated at as a Staph infection, even though the swab came back clear. At my next consultant appointment I was told that what I had suffered was very much a Behcet's problem.
Now the problem has moved to my face and causes me a lot of angst because it looks so ugly and sort of dirty somehow.
Around my nose and mouth I have red, bumpy patches of skin that look greasy even though my skin is actually quite dry (mature, shall we say!). Close up I can see the individual bumps, some have a small amount of gunk but most are completely dry. It is very sore, especially at the corners of my mouth, which are cracked and bleeding.
The other thing I can see when I look in the magnifying mirror is that each hair follicle has a tiny white plug in it. They don't look like your average whitehead, they are far too small for that. Because of the steroids, I have a lot more hair on my face than usual (it's not visible to the naked eye or the casual observer, but it's definitely there!). I tried plucking out the hairs to see if that would cure the problem. To be honest, I'm not sure whether it did or not but life's too short to spend it plucking hairs anyway!
I wonder if I should ask for a referral to a dermatologist or whether that is making too much fuss? And who do I ask for the referral - GP or rheumy? My old rheumy coordinated all my care but I'm not sure that this new one does
Sorry for moaning but I feel so fat and ugly at the moment and powerless to do anything about it.