I am a the wife of a Behcets sufferer. I have just joined this site. It took about 8 year to diagnose and he's suffered about 10 years now.
I wonder if anyone else has his symptoms and if they found any way to combat them?
Complete and total Alopecia - this was the first thing that happened 10 years ago. Has anyone else got this?
Next came Uvitus, Iritus and Vitiligo and mouth ulcers.
Then the fatigue.
Next came vasculitis resulting in a swollen knee and damaged cartilage from it.
Then a year later the same leg had a thrombosis from the vessels swelling and blocking the leg. He was treated wrongly in A and E for quite some time until I got through to the rhumatologist.
So then he went on steroids- still weaning off after over a year.
I looked up azothyoprine and spoke to rhumatologist who then prescribed it. It seemed to be at my suggestion although completely inexperienced and non medical background :/ He is on this as well as colchine.
So apart from the header questions about going into remission, I have so many questions. My husband is reluctant to find out info and I am in the dark. We have 2 small children and I have been worried sick trying to help him.
Sometimes some eye brows grow back but only wispy. Some times he has short white eyelashes...so I know they can grow and the follicle is alive. Sometimes he can go into the sun and his vitilligo is not so bad, other times its more dramatic and he can seriously burn his hands if the skin is in the sun and he has to wear bike gloves....
Lastly he has had a blood test and today they have called him in as his white blood count is high / he has some kind of infection and they said he needs antibiotics straight away. I asked why? What are they for. He does not know nor does he know what any of this means.
Anyone on azothyoprine that could shed light on this for me please?
Love and best wishes