I'm new to this forum and really glad I've found it, it's been reassuring to read some of the issues everyone has been facing (I didn't know how to best phrase that so I hope you understand my meaning!)
I've had Behcet's from around 11 years old, to the age of 29 currently, and have found it mainly effects my eyes with some fairly severe scaring in my left eye and light scaring on my right, but it has also effected other areas, like my white blood cells causing a fit/seizure (luckily just the one), and even inflamation in my ear canal causing real sensitivity to noise.
I really sympathise with those of you on here, but especially those that have children going through the disease at the moment, as I found it difficult to cope with growing up with the side effects of both prednisilone and ciclosporin.
I'm at a stage now where the condition seems to be under control (touch wood), with a good regime of tablets and infliximab. But for some time now I've been feeling this "brain fog" (I've seen it referred to on here as this and it sums it up amazingly!). Does this get better? I'm functioning ok but really feel a lot less sharp than I once was, and find articulating (it took me a good 30 seconds to think of articulating then!) myself in the way I want to difficult sometimes, as the words escape me.
As I start to think of the next stages in my life, I've been fortunate enough to not have the carrier gene, but am worried about the future with the unpredictability of the disease, and having another bad attack on my eyes deeming me severely partially sighted. My question is have you found there's a stage in your life where the disease has relented, does it happen? I've read somewhere that it can also go away completely, which would be amazing, but I am sceptical.
I've also found that no matter how much sleep I have, exercise I do, and well I eat that I'm always a bit lethargic, does anyone else find that?