Questions as new user but suffered alone questioning.

[Lojo12316]

Hi I am new on here. I've had bechets since I was 11. Now 33. Reading these posts are interesting re assuring and worrying. Will I suffer new symptoms as I get older ? Is anyone else off medication like me ? Is it hereditary as I think my son may have it.

[magician]

Hello!

I was diagnosed with bd at age 48. looking back, i would think that i have had bd symptoms since age 10 or so.

I was off meds until diagnosed. Even off meds, there were periods of remission. But by age 48, i suddenly developed recurring uveitis and retinal vasculitis which has never resolved. I have been on meds since being diagnosed at age 48. By age 55, i started feeling indescribable / debilitating fatigue, which goes on till now at age 56.

From my history, it is clear that new symptoms manifested as i gained in years. I do not know though if the progression of my bd is typical. My doctor did emphasise that my bd is my bd, other bds could evolve differently. Not every bd patient will have eye involvement. But do get your eyes checked asap in case you notice deteriorating vision, redness, etc.

I have no data regarding hereditary concerns...

All the best,

Be well !

[Lojo12316 in reply to magician]

Thank you for your reply. I think a lot of future illness will be put down to be so wise in advance to know what I could look out for really.

[magician in reply to Lojo12316]

Yes, it would be prudent to be well prepared.

That being said, do not live in fear of tomorrow's bd gifts. Live today and enjoy it?

[Hidden]

Hi My partner has had BD from birth now 57, we like you always wonder if it could be inherited but was advised by the doctors it was not 1000000 to 1 chance .

We have two boys age 32 and 29 both has BD from birth,over the years my partner has meet many people with BD and to have children with this condition is very rare.

But don't dismiss your son's symptoms as when we first thought our son's may have BD the doctors told us no, in fact we were told to stop wishing it on them and go away.