I was reading the American lady's site behcetsdisease.com/about.html where they seem to make a big deal about BD having a shelf-life and sort of switching itself off at some point. This has confused me because it's not what I've been told. It is certainly not what I'm experiencing.
In fact, my disease is getting progressively worse - new symptoms, new areas of pain (the latest is my elbow and my bones as well as my joints), and little space in between flares. In fact, I told my consultant that my diagnosis must be wrong because I am now constantly poorly - sometimes I'm less poorly than others but I'm never 'well' as I used to experience it.
He insisted the diagnosis was correct and, of course, I know very well that it is. Mostly I'm upbeat but sometimes - and especially just lately - it just all gets on top of me and I kick against it all. This probably just makes it worse!
Anyway, there is a question here, honest, and it is this:
How has your disease progressed and what is your understanding of BD progression. I realise, of course, that nobody really knows but it would be interesting to find out your understanding and experiences.