Hello all - two weeks ago I had vision problems and swiftly had diagnosis of inflammation in the back of the eye. I'm am due to start a course of steroids and immunosupressants on Friday. I've just turned 31 (male). The eye consultant is convinced it's Behcet's. Reading all the accounts does fill me with absolute dread.
-At 16 I had one bad case of ulcers in my throat
-Nothing for 13 years, I even remember thinking how odd it is that I get no mouth ulcers
-At 29 after working myself far too hard I got terrible tonsillitis, antibiotics worked a treat but I would get worse as soon as my course finished. 1 1/2 years ago during one of many bouts I also got a mouth full of ulcers.
-During this period I had an episode of extreme chest pain, I ended up in casualty and it went within 12 hours
-1 year ago at 30 years old I had my tonsils out and up until this point I felt cured.
I'm trying to prepare myself for the worst but understand that for formal diagnosis I may need more symptoms as I've never had genital or skin problems and two bouts of ulcers in my entire life.
I guess I could be at the proper start of my journey, I guess the eye thing has freaked me out big time. Has anyone been able to live a fairly good life with this conditions, has anyone seen their symptoms subside?