Behcet's disease information booklet - Behçet's UK

Behçet's UK

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Behcet's disease information booklet

Sunset profile image
13 Replies

Behcet's disease and the treatment

Turkey has prepared an information booklet of Rheumatology

romatoloji.org/static/trd_p...

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Sunset profile image
Sunset
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13 Replies
nurse_ratchet profile image
nurse_ratchet

That is great, but do you know if there is an English copy? No hable Turkish (I don't speak or read it) I'd even settle for French....:-(

andreafm profile image
andreafm

It is nice to hear from you again sunset...how are you?

Thanks for the booklet...I too cannot read Turkish so also wondered if there was an English translation version. It is good to see the medical profession making booklets to help their patients

Andrea

lesleyg profile image
lesleyg

Hi Sunset

As mentioned above nice to hear from you and hoping an English version will be out soon. The picture on page 6 looks like the ulcers I had on my legs which no-one knew what it was - pity I couldn't have shown them the book then!

Cheers Lesley

Sunset profile image
Sunset

Hi Andrea, nurse and lesleygee;

Turkish Rheumatology booklet prepared by the moment as I do not have the English. English translation, and when you would like to share with other friends.

Hope to see you

scruffy1 profile image
scruffy1

hi all i tracked down their facebook page all in turkish and i asked them to a copy in english so hopefully they will should make interesting reading as soon as i any update i will post asap

regards chris

andreafm profile image
andreafm in reply to scruffy1

well don chris...this was a good idea of yours

nurse_ratchet profile image
nurse_ratchet

Thank you Chris for putting in that request! Looking forward to reading that booklet ;)

Gen

scruffy1 profile image
scruffy1

well folks i tracked them down all of their facebook page is in turkish so i left them a message and i got a reply this morning and they said that they dont have the booklet in english and they have no plans to issue it in english anytime soon but i am going to print off the booklet and get it translated and i will post it up when i get it done i was surprised that they would not translate the booklet but as we all know by now anything behcets related is going to be a battle

regards chris

Sunset profile image
Sunset in reply to scruffy1

Hi Chris;

Behcet's disease Behcet's syndrome Association of memorization Ali Çetin spoke with a friend. Behcet's disease booklet stated that investigated the english translation.

scruffy1 profile image
scruffy1

hi sunset i am not surprised that there are no new treatments for bechets and i dont think there will be anytime soon as its not a popular subject and i do not think its profile is still very low until it becomes more trendy for the want of a better word so i will keep on pushing my rheumy for answers keep fighting sunset

regards

chris

Zebra profile image
Zebra in reply to scruffy1

Just to assure you that there are many medical trials currently trying new treatments for behcet 's and there have been big advances with biological treatments in the last decade too. There is a lot happening.

Sunset profile image
Sunset in reply to Zebra

Zebra hello;

There are advances in medical treatment of Behcet's disease. Research is underway in Turkey and in the world. In Turkey, the number of patients is really too much, I hope that soon the realization of remission. Behcet's disease an autoimmune disease is being ignored some information about

Tracey-Jane profile image
Tracey-Jane

There is a trial taking place in Toronto on October 25th at Toronto Western Hospital. It is a DNA study.

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