Behcet's and fatigue

[Dundee1963]

I've asked this question before but since we have more activity on the site ,I thought I 'd have another go.Any thoughts on what ,if anything,helps fatigue?.I read recently some Doctors have prescribed stimulant drugs.

[tamirra]

Im glad someone has asked this question i look forward to some answers. x

[Hidden]

Me too!!

[lesleyg]

I don't have any answers so will look forward to any posts. I've been on Methotrexate for 4 weeks and this is the most energy I've had in 2 years (very difficult to explain to someone who doesn't have the disease.

Lesley

[jkdee]

I have been on B12 injections every 3 months this helps with fatigue for the first month that I have the injection but as it wears off and by the time my next injection is due I am ready for it. I can always tell when it is due as the fatigue is very bad. Therefore, what I am suggesting is if you haven't already, then maybe get your B12 levels checked. Like I said it's not a long term boost but even a month at a time is something.

[Dundee1963 in reply to jkdee]

Hi

Thanks for your reply.Can I be a bit noisy and ask who organises the B12 injections?

[Dundee1963 in reply to Dundee1963]

Sorry meant nosy! Should have attended school more often.

[Hidden in reply to Dundee1963]

Hi Dundee 1963 I also have Vit B injections and this was sorted or through my GP

[Leslie33]

There is a medication called Provigil which now has a generic that my rheumie just gave me. It was made for narcolepsy & is often given to ppl who work @ night. But it is also given to ppl who suffer with extreme fatigue/exhaustion whom have autoimmune diseases that cause it.

[Dundee1963 in reply to Leslie33]

Hi leslie33

Thanks for your reply.Is this drug Provigil helping the fatigue?

[Stablest in reply to Leslie33]

Hi Leslie I was diagnosed with narcolepsy and put on modafinil (pro vigil). I am not permitted to drive without it in my system. It helps me very much. I’ve gone from sleeping 16 hours a day to working 9 and travelling 2. 5 days a week. At the weekend though I do sleep a lot and some nights I get home shower and am asleep by 8pm. I still get ulcers, joint pain and rashes but when you’re not severely fatigued you can cope much better with the rest.

[Jazzy21]

I have often said that in the 18 years I have suffered with until recently diagnosed Behcets that the most crippling thing I have had to live with apart from the headaches, the mini strokes, the pulmonary embolisms and the excruciating mouth and genital ulcers is the complete exhaustion. This is even worse that then bone crushingly painful joint problems. I would love a medical person to enlighten us all on this forum to why that happens. And how we can get rid of the tiredness.

[Sunset]

Hello, Dundee;

Behcet's disease affects multiple systems in the body at the same time it is inevitable fatigue and muscle aches.

To discuss;

[beth12]

Hi Dundee,

this is the worst problem for me too although my GP and consultant are good and very understanding they don't have any answers to helping this problem they say try to rest when you can and more when you get the flare ups, do other sufferers get really bad headache before the chronic fatigue sets in ? look forward to any tips