Hi, I'm new to this posting but I'm 20 and got diagnosed with this disease about 5 months ago after suffering a cerebral venous sinus thrombosis in September last year. This led me to be hospitalised as I suffered complete left sided paralysis as a result of the thrombosis. I have always had mouth ulcers and some of them are really large as well as occasional genital ulcers. Before this I was really active, playing hockey 3 times a week and going to the gym, never smoked or taken drugs, don't drink and eat healthily.
They are trying me out on different medications and currently I am only on colchicine daily as an anti-inflammatory but it doesn't seem to be reducing the ulcers. I was on warfarin for 6 months after the stroke.
I also experience shooting pains in my fingers and back and sometimes down my legs. Are these symptoms of the disease?
Does anyone else know what other medications there are? I am being transferred from specialist to specialist amongst all the London hospitals and yet to find one who can come up with a suitable medication to control my symptoms.
Also is this disease likely to get worse as I get older does anyone know?