I am wondering if anyone else has been told they have high LDH levels?
I was at the clinic yesterday having my Remicade infusion and my nurse told me that my LDH level had risen again and that my rheumatologist has sent in a request for me to have an abdominal CT scan. This blood test (called lactate dehydrogenase or "LDH") is a sign of tissue damage and inflammation in the body, but doesn't specifically tell the doctor where it is occurring or why. The most serious thing high HDL is associated with is Lymphoma. I had this scare already last summer when my LDH had doubled within two weeks, so there was fear about Lyphoma because of the immunosuppressants and Remicade treatments I am on. I had an abdominal CT at that time as well, because I guess the type of Lymphoma that is associated with these therapies begins growing in the abdominal lymph nodes. Because I already went through this last summer, and also because my LDH level has been higher than normal for a long time now, even long before I began any Behcet's treatments, I'm not too worried about Lymphoma this time around. But I do often wonder exactly why this level is so high in me and why it often will double so quickly. Maybe it is a common finding with active Behcet's? This is the only "inflammatory marker" that has been found in me as I have tested negative for the c-reactive protein and for any antibodies, and also have normal ESR sed rate, etc.