sway and rock: when im standing unaided i sway and... - Ataxia UK

Ataxia UK

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sway and rock

jayjay1251 profile image
9 Replies

when im standing unaided i sway and rock its like im on a ship but im not

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jayjay1251 profile image
jayjay1251
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9 Replies
loopylainy profile image
loopylainy

Hiya!

I know what you mean, I have double vision and nystagmus, haha its like being permanantly drunk and wearing someone else's bifocal glass! xx

tedjohnson profile image
tedjohnson

Yes I have the same 'sway & rock unless I can hold on to a wall or furniture

Although my eyesite is fairly good there is a short delay in focusing

Sitting in a car driving is fine at the moment but not sure whether it will get worse

Does anyone know exercises which help

I am 73 so 'getting on!!!!'

jayjay1251 profile image
jayjay1251 in reply to tedjohnson

HEY BRO UR AS OLD AS U WANNA BE L&R

dleif55 profile image
dleif55

Join the club? I sway in my chair know , I seem to sit as far back as I can. When not in the wheelchair try lying down , it helps. We don't have to spend money to feel drunk anymore .

Regards

gossy profile image
gossy

this was when i knew i had attaxia i had been feeling funny for a while then one day i couldnt walk in straight line without holding onto wall it brought back memories of how my dad used to walk so i knew what is was though it took a further six months to get diagnoised

tedjohnson profile image
tedjohnson

does anyone do eye exercises to help with their sight problems ?

I have started doing them to help with Virtigo and I 'think' they are helping but it

is early days

Cheers tedjohnson

joybells profile image
joybells

new to this site, as only properly diagnosed yesterday after 8 years! i am so glad i'm not the only one swaying and rocking. I do find, sometimes though, once I get going and holding onto something or someone I can manage to walk slowly in a straight line, but stopping/starting and negottiating a step is the worst bit.is it just me, or was anyone else scared they might have early parkinsons, before diagnosis. i wish i was different, but i do get very embarrassed when in public and this happens. does anyone else have a slight rocking motion of the head and neck when trying to sit up straight for too long. joybells

jayjay1251 profile image
jayjay1251 in reply to joybells

WELCOME JOY I CAN IMAGINE THAT ITS QUITE A RELIEF HAVING A NAME AS I KNOW I CAN NOW DEAL WITH THE PROBLEMS THAT ATAXIA BRINGS

Donnybluewayne profile image
Donnybluewayne

I sway and rock too, find I can walk and play golf even if I use a shopping trolley or a golf trolley. But walking unaided is very difficult, I have just applied to Notts CC for a blue badge but the questions aren't helpful for us with ataxia more pain/breathing related. Here's hoping as my confidence crossing roads etc is very poor, so is my bladder haha

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