Hello 👋

[Poppylove1]

Hi, I have been feeling wobbly for some years and thought I was clumsy.

After MRI , I was diagnosed with ataxia. Just waiting on neuro appointment to confirm results from genetic tests!

Currently having to mobilise with a stick.

Not sure how this will progress. I'm still working full-time, studying part-time with The Open University and trying to enjoy life. Best wishes to all xx

[wobblybee]

Welcome🙂

I was similar..iffy balance - dizziness etc for several years…until I finally started having falls. It was only then that my GP paid any attention.

🙂 Continuing to do stuff you enjoy will stand you in good stead.

I’ve had genetic testing myself, but frustratingly so far no link has been found with a specific type of ataxia.

🙂 I manage with a walking stick…but I also bought a rollator..this can make a big difference when walking.

🙂Best wishes xx

[Poppylove1 in reply to wobblybee]

Thank you for getting back to me. You sound like you're being positive too! Well done and hang in there. 👍❤️😊

You feel very alone at times with this, don't you. Glad I found this site to share fears and positive thoughts ✨️ xx

[wobblybee in reply to Poppylove1]

🙂 I did feel very alone, and confused. A Specialist Ataxia Nurse advised contacting AtaxiaUK..and that was the turning point for me.

🙂Keep in touch with us..nothing is too trivial to discuss, xx

[Jellybean75]

I was the same. Saw my dad go through same experience many years ago. Eventually trainee gp decided he would refer me to neurologist for further consultation and he diagnosed acquired ataxia. Having seen my dad with this condition I kind of knew what the outcome would be. A good place to visit is Ataxia UK, they offer all kinds of support. Apply for a blue badge if you drive and like Wobblybee says - a rollator is a very good thing. Good luck with neurology and keep smiling xx

[Poppylove1 in reply to Jellybean75]

Thanks so much. Best wishes ❤️ xx

[7151]

Yes i was wobly for years and felt relived when they put à name to it and i was nt going daft ..but its now been 3 years of blood tests lumber puncture 3 MIR they still dont know which of thé 8 forms i have i ve gone from à walking stick to à rouler i can no longer walk round shops its à battle but battle on could be worse ..keep moving and fighting for handicap badge ect ah i m now going to à clinique i was on thé waiting list for 6 months my local physiothérapie said they could do nothing ..this clinique is great xx good luck youll be fine xx

[Poppylove1 in reply to 7151]

Thank you. Best wishes ❤️

[Sea_]

it’s not an easy battle but I find “use it or lose it” and “live for the moment “helps me.

People that you thought would be there can’t handle it but others appear in my experience so don’t worry. I find here and Ataxia UK very helpful and supportive 😀

I had my driving assessment yesterday and although they said they noticed more my hands i passed for an automatic.So relieved getting disability action to give me a few lessons to improve my confidence didn’t even know they did that

Lots of love and hugs and support in the meantime 💕