menopause and ataxia!!

[TedTom]

Partner has sca diagnosed 2007 , patient of Prof Hadjivassiliou at Sheffield. She is now menopausal, which appears to exacerbate sca symptoms at times but has recently developed migraines, making her very sick . Has anyone had similar experience and in particular if so did you find any treatments that were safe and effective?

many thanks

[penelope2]

Your wife is under one of the best neurologists in the UK with Professor Hadjivassiliou. He specialises in gluten ataxia and he will be interested to know about your wife's migraines.They are one of the signs of GA.

I too had migraines and headaches for many years and they are horrendous. My heart goes out to her. She needs to contact Sheffield for medication that she can take safely with ataxia. I'm not sure how being menopausal will effect either of these conditions but certainly a change in hormones might do.

Best wishes to your wife.

[anihol]

Hi yes I did riboflavin 400mg one daily, you can order them from Amazon. And amitriptyline at night, both together work great for me. The riboflavin was advised via ENT so legit info

[wobblybee]

🤔Is she diagnosed with Spinocerebellar Ataxia (SCA)…or Gluten Ataxia.

It’s possible migraine is linked to Perimenopausal symptoms, and not necessarily ataxia.

The hormone changes that happen as women approach the menopause mean that all types of headache, including migraines, become more common.

nhs.uk/conditions/hormone-h...

[littlelegs914]

hi , the menopause definitely worked its magic with my ataxia symptoms .i take starpower gummies from Holland and Barrett especially for the menopause symptoms all gluten free.as for the migraines I have hemiphlegic ones and the gummies help balance the hormones so they work for me.the lady’s in my Holland and Barrett are brilliant with menopause recommendations so hopefully they will advise your wife if you go down that route.

[klazien]

My Cerebellar Ataxia was diagnosed after the menopause so I don’t know if it would have had any effect.

Migraine runs very strongly in my family but with my mother it stopped when she entered the menopause. I don’t know about my grandmother, etc.

With me it did not stop and my sons with different hormones and no menopause, also suffer from migraine. Sumatriptan helps all of us but taken it for longer than 3 days is bad.