Having trouble walking

[KiwiBob]

I am off work this week. My ability to walk went away. It has taken 4 days of rest to be able to move about again.

The German drug I am on, which I get from Sheffield Ataxia Center is wearing off.

I am slowly returning back to the way I was before I started taking the drug.

I contacted the Ataxia nurse at Sheffield and she is going to speak with the professor.

I am Just waiting on her calling me back.

In the meantime I will take my wheelchair into work next week, and use it to get about, when I am having a bad day

[Jujubeelu]

What's the name of the drug?

[KiwiBob in reply to Jujubeelu]

Flunarizine-CT 5mg Hartkapseln

[Jujubeelu in reply to KiwiBob]

What is it for?

[KiwiBob in reply to Jujubeelu]

I have Gluten Ataxia. It helps to reduce and remove symptoms of Ataxia.

[aburt449]

Bless u! I hope they will sort it out for you real quick! Take care x

[wobblybee]

I tried Flunarizine, minimum dose for a short while. Have you noticed whether it caused weight gain 🤔

I’ve seen positive comments on other groups, but the downside was weight gain.

[KiwiBob in reply to wobblybee]

I have put a small amount of weight on.

[wobblybee in reply to KiwiBob]

🙂 That was something I’d been warned about when it was prescribed, and I’m already struggling with weight gain..

[KiwiBob in reply to wobblybee]

Is it helping with your Ataxia?

[wobblybee]

I didn’t take it long enough to find out. Although I’ve read positive comments. The reason I stopped ..pain was really becoming an issue and I needed to get on top of that, so I started taking CBD Oil. I was concerned about any interaction, so I concentrated on the pain relief.That’s not to say my ataxia isn’t challenging, I find it restricting 24/7.

[BlanketTime1]

sorry this is happening. i hope you get relief and am sending you🤗. stay strong.

[coat2003]

sorry to hear that.my neurologist veryngood. First thing he asked if gluten allergy. All other food related, but thank god no gluten.Not that it cannot popped up.eating like a horse, no weight gain.back to the drawing board, ask my gp to run the blood test again plus vits.See what's what?Take care and keep us posted.