Tru Niagen as a teament: I have SCA7, I'm a 3... - Ataxia UK

Ataxia UK

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Tru Niagen as a teament

C2a2o2 profile image
8 Replies

I have SCA7, I'm a 33 year old female. My eyesight is pretty bad and my balance and co-ordination is ok but not great.

I have been taing 900mg of Tru Nigen daily since May and I've havee noticed some small improvements. Now, when I stand up I don't feel like I'm going to fal over. I get much less stifness in my legs. My hands are a tiny bit more co-ordinated and I just feel a bit better overall.

I live in Ireland and I find it really hard to buy Tru Niagen especially since Brexit. Does anyone have any tips for getting it? I order from Ergomax when they ave it in stock but they seem to run out a lot.

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C2a2o2 profile image
C2a2o2
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8 Replies
Libra7 profile image
Libra7

Amazon advertises Tru Niagen but it seems to be very expensive.

C2a2o2 profile image
C2a2o2 in reply to Libra7

Thanks, it won't work in Ireland unfortunately.

Buffergirl profile image
Buffergirl

Hi, yes, I'm repeating Libra7's message that it is being advertised on Amazon. Did a doctor recommend or did you find it following your own research? It's encouraging that you are noticing a difference.

C2a2o2 profile image
C2a2o2 in reply to Buffergirl

Thankks, I can't get it in Ireland from Amazon unfortunately. No, not a doctor. I read about a trial using it on clinicaltrials.gov and decided to try it.

wobblybee profile image
wobblybee

For anybody considering buying this.......Nicotinamide riboside is a member of the vitamin B3 family, which also includes niacin and niacinamide. It's found in fruits, vegetables, meat, and milk.

There has been mention of this dietary supplement in clinicaltrials.gov in relation to ataxia...but no results published.

CardiCorgi profile image
CardiCorgi

In the U.S. if you buy directly from the manufacturer's website they offer a 26% discount for ordering by subscription. Sadly, it is still quite expensive. Here is the link in the U.S. I hope it works in England: originalText

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There was a human clinical trial for Ataxia Telangiectasia with results.-

Nicotinamide Riboside Improves Ataxia Scores and Immunoglobulin Levels in Ataxia Telangiectasia -

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originalText

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There are also ongoing trials of Nicotinamide Riboside for Parkinson's Disease and a second trial for Ataxia Telangiectasia.

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Also important to bear in mind, nicotinamide riboside enhances sirtuin activity. Niacinamide inhibits sirtuin activity. Different forms of vitamin B3 can have very different impacts on the body's metabolism.

C2a2o2 profile image
C2a2o2 in reply to CardiCorgi

Thanks, they son't deliver to Ireland, I'm not in England. Thank you.

Voice1 profile image
Voice1

I am giving this a go 🙏

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