Hi - I have a 2 year old who became very unwell almost 3 months ago. She lost her ability to sit stand speak and developed nystagmus. This happened while we were on holiday. As the weather was very hot, doctors immediately put her on a drip. She is an extremely stubborn and fussy child so cried her eyes out 24 hours while the drip was on. She was so unsettled that she did not sleep for a few days and was constantly crying. I initially thought that she lost all her abilities due to this excessive crying. Doctors suggested we do a brain mri followed by EEG which were all normal. They gave her a dose of steroids and she started her normal activities over the course of a few days (she slept immediately after the steroids - she had not slept for 4 days!). Unfortunately 6-7 weeks later her speech started sleuthing again and whereas she didn’t lose her ability to walk, she became ataxic (very wobbly, falling every few steps and very unbalanced).
Has anyone else’s child experienced similiar symptoms? What diagnosis was made for them? She is due to have her mri but I am dead worried about my daughter so thought I will ask for advise here.
A few additional facts - I have always suspected some food intolerances in her since she was born. So I breastfed her while staying on dairy free egg free nut free and low gluten diet. She gained weight in the first 2 months but this became extremely slow after 2 months ( on hindsight I think the low weight gain may have been due to my new diet). Doctors told me she did not have allergy so I started re-introducing dairy back in her diet from 1 year if age - a bit of on and off I.e. stopping when I noticed her reflux getting worse and restarting in hope of success. I never kept her gluten free although did keep her gluten intake to a very low amount.
I will greatly appreciate if anyone has any similar experiences they can share as I am dead worried about my baby! Thank you in Advance xx