I have FA, diagnosed about 20 years ago at age 19. I have been very lucky and progression has been slow. However my heart is not doing so well. I have Dilated Cardiomyopathy, suffer from Atrial Fibrilation/Flutter/BiGeminy, have an ICD implanted and had two ablations in the past year. I was cardio inverted twice last year and the 2nd one was unplanned and had I been at home I would not have seen the morning.
Does anyone else here with FA have similar problems? I would especially like to hear if anyone has any experience related to heart transplants in people with Ataxia - especially in the UK?