A new online community for 2 specific rare diseases - Ataxia UK

Ataxia UK

4,110 members4,689 posts

A new online community for 2 specific rare diseases

wobblybee profile image
0 Replies

New online community for SCA14 and SPG7

RareConnect is a place where rare disease patients can connect with others globally and share trusted information with one another in a safe environment. EURORDIS (European Organization for Rare Diseases) have recently created online communities for SCA14 and SPG7 on RareConnect.

Written by
wobblybee profile image
wobblybee
To view profiles and participate in discussions please or .

Not what you're looking for?

You may also like...

Survey for Rare Disease UK-for carers and patients with rare diseases.

Dear all Please see an e-mail Ataxia UK have received from Rare Disease UK below. As I have...
HarryB profile image
Administrator

Dietary Change Worth it?

Hi All I have been very recently diagnosed with Ataxia SPG7 I have been wondering if changing my...
Pineapple12 profile image

Tremors and Dystonia

Hi everyone, I am new to this site. I have tremors and dystonia in my neck, but now no definite...
suzie44na profile image

advice

I have had a copy(s) of the brochure from Ataxia UK, and submitted them to the DWP and the court,...

Occasional tremors - experience and "treatment" would be highly appreciated

Hello. I'm 26, I was diagnosed SCA14 when I was 16. My disease has evolved over the years and my...
thenwg profile image

Moderation team

See all
HarryB profile image
HarryBAdministrator
VE93 profile image
VE93Administrator
WendyBom profile image
WendyBomModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.