Death in the family and the Trehalose discussion.

[neta]

Sorry I have been unresponsive and kind of out of it. My husband very unexpectedly died (way 2 young) and I have much to sort out. Of course this entire saga affected my ataxia very badly. I am happy for those positively affected by Trehalose and wish everyone well as ever N

[bevvick1964]

So sorry for your loss you poor love. We're all here for you ❤❤❤❤❤

[neta in reply to bevvick1964]

Thanks so much...

[Hidden]

So sorry to hear your tragic news

[neta in reply to Hidden]

Thanks for your sweet words..N

[VivienMeeson1]

Sorry to hear of your loss. I hope you

Have friends and family around you to

Help you cope

[neta]

I do but this is all very new and unreal Thanx for your kindness..N

[maber]

Hi Neta I am so sorry to hear of your loss , to lose someone so dear unexpectedly is really hard as you have no time to adjust . I found that if I consentrated on the fact that THEY knew that I had loved them , by the way I had shown ,cared and told them then their time hadn't been a waste and some people can go a long lifetime and never find the love or devotion that we got . ( I lost my mum , we had gone to stay with her at xmas a few years back and just before we were due to go back the day before new years eve I went in to wake her in the morning and she had passed away in her sleep with my dad next to her sleeping , so I then had to wake him up . We had known that she was in a lot of pain from her spine crumbling but none of us knew that would happen ) So please Neta think of the positives in your relationship and they shall bring you some comfort , i'm not saying that you won't feel the loss but ,that they knew your love and if you and your husband had planned or wanted to go somewhere .... go and take your husband in your heart and share the beautiful place with him , because i'm sure that he will be right beside you but you just can't see him ! All the best Neta xx

[neta in reply to maber]

Dear M

Than you for your sweet thoughts. He didn't quite understand ataxia or why I complained so much. But in retrospect I realize that despite its existence he hoped or assumed it would vanish. His own death was (unlike your Mum;s) painless, instant and unexpected although cardiologist--friend told me "there is always a sign". If that is true then the sign was abdominal pain and nausea plus a UTI. But who k new that those symptoms were fatal? My husband followed all the rules. He ate right, worked out a lot and swore off whiskey--which he loved. Gone . But thanks for your kind words and feel well. L,N

.

[Litty]

So very sorry xxxxx

[neta in reply to Litty]

Thanx N

[Dressy6]

So sorry to hear about your loss. I hope that you are OK. X

[neta in reply to Dressy6]

Thanx N

[Mermaidia11]

I am so sorry for your loss and send you a hug down the t'imterweb x

Words are useless, but know that you are in our thoughts and prayers and love Is being sent to you x

Just take one day at a time and we are all here to talk to.

Much love ✨💕

[neta in reply to Mermaidia11]

thanks so much 4 your kind words. I feel your hug. Be well Love N

[Victoriousvee]

Hello Neta I pray that the sweet loving memories of your husband will flood your thoughts and warm your heart daily as you adjust your this new phase in your life may the angels of the Lord massage your heart with peace

[neta in reply to Victoriousvee]

Thanks so much-- this new phase is so unwanted and unexpected but your messages are soothing and sweet.

[Victoriousvee in reply to neta]

As long as your heart is warmed and encouraged daily

[neta in reply to Victoriousvee]

not there yet but thanx

[Victoriousvee in reply to neta]

It's a daily process you are handling it the best you can, some people would have been in a coma or nervous breakdown due to the shock, so you are maintaining

[neta in reply to Victoriousvee]

Thanx Vic. In the meantime, I am nervous as hell There's so much unknown. So much to do...

[february]

Dear Neta, My deepest sympathies to you at the loss of your husband! My first husband died (he was 43 and our children were 12 and 14), so I kind of know what you're going through, although I didn't have symptoms of ataxia then. Anyway, I'm so sorry, as it's more then difficult!!! Take care...

[neta in reply to february]

Thanx 4 your note. Im not ready for this, and not with ATAXIA!!!

[Ginger1]

Sincere condolences. I'm so sorry. 😙

[neta]

Thanks for your kind reply...

[Iain_100]

So so sorry to hear that neta. xxxxx

[neta in reply to Iain_100]

Thanx for you kind condolence remarks, Iain. N

[Hope99]

Oh I am so sorry, what an awful shock for you - thinking of you. Grief is a long journey so please remember that lots of us in this forum can be here for you as you need us.

X

[neta]

Thanks for your sweet and kind comments N

[Zigalig]

Dear Neta

So sad and sorry to hear of your loss. I moan about my husbands ability as my carer and give him 2/10 but can't imagine my life without him with or without ataxia.

Just be good to yourself and do whatever you need to get through. We are all here for you,

Sending love, prayers and hugs,

Amanda

xxxxxx

[neta in reply to Zigalig]

Dear Amanda,

thanx for your sweet words. I also moaned but feel very addict now.

[wibblywobbly]

hi Neta, I'm so sorry for the loss of your husband. What a terrible shock. Give yourself time to adjust and treasure your precious memories of your times together.

I'm sending you my love via the internet and strength.

we're all here for you on this site. Thinking of you. Big hugs

Alison

[neta in reply to wibblywobbly]

Thanx for your sweet thoughs Alison. Im not up to treasuring memories, its all too new.Complicating matters is ataxia, the idea of being alone, and his very complex finances. love N

[berejena]

Dear neta so sorry for your loss, RIP. Poor you you have much to deal with, love & prayers ❤️🙏

[neta in reply to berejena]

Thanx for your kind words. I need many prayers In heath L N

[JP66]

Neta,

I just got back from vacation and read your post. I don't know what more I can add from what others have said, and the internet makes it so difficult to be human while at the same time giving us connections we may never have had.

I offer my deepest condolences and wish I could take away some of your worries. Truly.

You are not alone, and I am certain you are in the thoughts and prayers of everyone here!!

Joe

[neta in reply to JP66]

Dear Joe,

Thanks for your kind words and wishes. My brother insisted that I live with someone, so I have a woman who lives w me. She is lovely but quite costly.

I still can't quite believe my Man is gone. How cruel! N