So let me introduce myself first. Good evening everybody! So let me introduce myself: I am a Friedreich’s Ataxia woman, living alone in an apartment in Zurich, Switzerland. With the help of several personal assistants and thanks to a certain talent to organise things and invent tools, this is still possible. I am alone for several hours a day and also through the night. I’ve been having the disease for 40 years or so… And it is sort of enough. Don’t let me discourage anybody! Quite on the contrary! Go for it! Live a phantastic life! I had one, full of love and happy and difficult years. Between 2002 and 2006 I was the editor of the newsletter of Euro-Ataxia,but after this period I withdrew from any social activity and helped to establish a project for people in similar situations. This was new in Switzerland. It is now inherent part of legislation.
Since three or so years, there is no end to broken wheelchairs, broken spines, shoulders, eyes or bladders… I’ve always thought of life as being more than just managing the material body. A friend sent me to HealthUnlocked to ask: Can anyone here tell me if he or she had botox injection to manage incontinence of the bladder? Would he or she share his or her experience with me ? An operation with botox is something quite unusual and even mor special for someone with FA , wich is why I am writing to you ( Eengland,Switzerland). Thanks a lot in advance!