After a lot of thought & talking to family, friends & on here I decided I no longer wanted any more tests doing in me. I’ve had tests for 9 nearly 10 years with nearly all of them coming back clear. The mri’s showed small changes & the anti gad always came back higher than normal. I was due to have another test done requested by the professor I’m under but when they rang me with a date another test had been added on that I knew nothing about, no discussion & no authorisation from myself. Even though I knew the all the tests were being done for my benefit It was the final straw where I felt like I’d finally lost control over my own body, Id started with anxiety, was constantly worried, stressed, snappy so I rang back & cancelled them. The secretary was extremely rude asking me did I realise just how long ppl had to wait for these tests doing making me feel even worse & even more guilty than I already did!
Yesterday I saw my consultant neurologist at st Luke’s in Bradford who I’ve bern seeing for around 7 years, as soon as I walked in I burst into tears & everything came out how I’d been feeling & didn’t want any more tests ect & he was absolutely wonderful! He said he’s surprised I’d gone on for as long as I had done & after I spoke & he listened to everything he said my feeling were perfectly natural & he was going to write to the professor & explain everything & that I’d now be taking a ‘holiday’ from Sheffield & any further tests. I’m now going to stay under my consultant & can return back to Sheffield when & if I decide to move forward again.
I’m sorry for such a long post but I wanted to let anyone else know who maybe feeling like I did that these feelings are perfectly normal & you won’t be pressured into doing anything you don’t want doing. I would have so loved to have read something like this & know no one would think any the less of me, so I’m just hoping by reading this it may help anyone else make the best decision for them.