Many thanks to Tina Thatcher for organising the meeting at Swalwell Holiday In. It was good to meet people with the same problem as me and to start off a discussion. I really look forward to the next one in January. Tina also brought across some useful information. I think the formation of groups like this can only help towards eventually finding a solution to our problem.
Many thanks to Wobblybee for offering to take on the bulk of the administration work.
Well done to everyone there. We are not alone.