I am feeling very anxious right now. My 4 year old daughter had a bronchial lavage and a bronchoscopy this past week. This is her second one. According to our consultant's at Addenbrookes and Prof Bush from the RBH, she is on the maximum doses of all of her medications and she is nowhere near under control. She is on 10mg ceterizine, 4mg singulair, 15mg lansoperazole, azithromycin (three times per week for the anti-inflammatory properties), Seretide 250 (4 puffs a day), salbutamol nebs and inhaler. She also takes 40mg of steroids very regularly. They also repeated her pH study as well.
What comes next for a little one? Can they do subcutaneous meds for a little one? She is still needing her blue inhaler every four hours, around the clock. She is desat'ing regularly. I am so lost as to what could possibly come next. Xolair has been ruled out due to NHS guidelines. She is admitted to hospital at least every 4-6 weeks for several days at a time. Any guidance would be great.