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Lung Conditions Community Forum

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All posts for September 2023

Stories from a Hospital Volunteer - The Teddy Bears Picnic

This is a story about a lady patient who we met on Monday, a lady who lay in bed next to a teddy bear. The lady was cheerful and talkative, welcoming my...

This is a story about a lady patient who we met on Monday, a lady who lay in bed...

Greenthorn

•8 months ago

20 Replies

diffuse idiopathic pulmonary neuroendocrine cell hyperplasia. DIPNECH. I was diagnosed with this in Aug 2023 by Royal Brompton.

nobody outside of a small group of doctors at Rbht appear to know about this. It has no treatment. mic been asthmatic since 10months of age so I’m familiar...

nobody outside of a small group of doctors at Rbht appear to know about this. It...

Bellaowl

•8 months ago

18 Replies

New to the forum Peak Flow questions

Hi and thank you for allowing me to join your forum. Q: So I've done a peak flow diary over 22 days before I speak to GP tomorrow. My average readings are...

Hi and thank you for allowing me to join your forum. Q: So I've done a peak fl...

Sallybones

•8 months ago

20 Replies

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fibrocis /pulmonary hypertension.

I’m in hospitial at the moment my oxygen is 89 then goes to 96 I’m having scans n ecgs , someone has mentioned fibrocis and pulmonary hypertension to be honest...

I’m in hospitial at the moment my oxygen is 89 then goes to 96 I’m having scans ...

Hometeam2016

•8 months ago

13 Replies

May lose my house

I tell you it just gets worse at wits end so sorry to bother you all

Iamhealthy123

•8 months ago

12 Replies

SR1 form replacing the DS1500 for certain Benefits including PIP.

SR1 form replacing the DS1500 for certain Benefits including PIP. Good afternoon, I currently have a DS1500 form in place for the PIP Benefit I currently...

SR1 form replacing the DS1500 for certain Benefits including PIP. Good aftern...

Joseph260268

•8 months ago

5 Replies

Chronic

3 years, started with a dry cough. 1 year ago I started with a stuffy nose & wet cough. Now I have excessive phlegm. Choking phlegm! Been thru blood work,...

3 years, started with a dry cough. 1 year ago I started with a stuffy nose & wet...

Frustratedo

•8 months ago

7 Replies

Fear and panic

Sorry I keep on about this but I fear going into a mental home as not looking after myself

Sorry I keep on about this but I fear going into a mental home as not looking af...

Iamhealthy123

•8 months ago

8 Replies

No diagnosis

I am desparate tonight. I've woken and coughed myself fruitlessly into a panic, after spending the last 2 weeks trying to stop coughing fairly successfully....

I am desparate tonight. I've woken and coughed myself fruitlessly into a panic, ...

Q-owl

•8 months ago

15 Replies

My Condition and OP - Update.

Hello all. Was having a lie-in this morning - The phone rang and it was the urology waiting list people. I was informed my op to see if the BCG treatment had...

Hello all. Was having a lie-in this morning - The phone rang and it was the uro...

Ern007

•8 months ago

20 Replies

Bronchiectasis

Can anyone with bronchiectasis please tell me how they clear sputum that feels like it's stuck in your throat and can't cough it up?

Can anyone with bronchiectasis please tell me how they clear sputum that feels l...

Teralea

•8 months ago

12 Replies

cruising with oxygen

Hi everyone, my first post so be kind, I am now on oxygen,3 litres pm for 15 hours a day,is there anyone similar that has been on a cruise? I would love to get...

Hi everyone, my first post so be kind, I am now on oxygen,3 litres pm for 15 hou...

Vespa1950

•8 months ago

13 Replies

Final update

I'll leave you all on peace as you must have been sick of my updates. Home now and learning to cope with having a bath etc without oxygen.. I do feel...

I'll leave you all on peace as you must have been sick of my updates. Home no...

garshe

•8 months ago

35 Replies

Positive stories please-I am training to play masters level field hockey - want to hear some positive stories (46yo,mildbronchiec, low lobes

teacher, not much going on until covid, 2 x pneumonia, 3 x covid, 3 weeks ago pneumonia, got diagnosis after......mild bronchiectasis both lower lungs...

teacher, not much going on until covid, 2 x pneumonia, 3 x covid, 3 weeks ago pn...

PETeacherSGblue

•8 months ago

23 Replies

Spooks In A Graveyard,

I painted this while was having eye drops for infection. Halloween painting with spooks, a manky old fence and grave stones. The ghosts they come out at...

I painted this while was having eye drops for infection. Halloween painting wit...

Ern007

•8 months ago

30 Replies

Don't think I can cope anymore

No one seems to understand I have one sister who doesn't want to understand mental health and lung and breast cancer and just one friend who struggles with his...

No one seems to understand I have one sister who doesn't want to understand ment...

Iamhealthy123

•8 months ago

17 Replies

it’s me again

I try to do one thing a day.. did that this morning & took HRH for his pedicure.. he hates it.. they string him up & have to put a muzzle on.. kings don’t...

I try to do one thing a day.. did that this morning & took HRH for his pedicure...

adenough

•8 months ago

10 Replies

Palliative care

My health has taken a nose dive over this last year. My consultant has put me on palliative care. He says no more lung function tests or CT scans, a triple...

My health has taken a nose dive over this last year. My consultant has put me o...

wheezyof

•8 months ago

14 Replies

Update

Well today is the day for the scan hopefully. Feeling a bit more human as my daughters brought my tongs and make up down hospital. No one recognised me when...

Well today is the day for the scan hopefully. Feeling a bit more human as my da...

garshe

•8 months ago

25 Replies

A Simple Cactus Painting.

Hi everyone. I have been doing spooky paintings but - I am having drops in my eyes for Conjunctivitis- Age-related macular degeneration in my right eye. I...

Hi everyone. I have been doing spooky paintings but - I am having drops in my ...

Ern007

•8 months ago

27 Replies

Crossstitch

my husband has Pulmonary Fibrosis, the coughing is awful & he’s bringing up slight phlegm. We’ve asked for “puffer” but they won’t give him one, WHY??? My...

my husband has Pulmonary Fibrosis, the coughing is awful & he’s bringing up slig...

Xrossstich

•8 months ago

16 Replies

Still in Hospital

Cant get scans until tomorrow owing to weekend so stuck here Will keep you updated. Thanks all for your good wishes xxSheila 🙏🙏⚘💕

Cant get scans until tomorrow owing to weekend so stuck here Will keep you upd...

garshe

•8 months ago

50 Replies

Don't know what to do

Getting hardly any sleep no energy to cook don't know what I should eat. No real support

Getting hardly any sleep no energy to cook don't know what I should eat. No real...

Iamhealthy123

•8 months ago

23 Replies

Mild bronchiectasis, recent diagnosis, PE teacher, help, so sad!

Hi everyone, thank you in advance for reading and replying......? I am 46, female, a K-5 (elementary) PE teacher, and have recently been diagnosed with Mild...

Hi everyone, thank you in advance for reading and replying......? I am 46, fema...

PETeacherSGblue

•8 months ago

25 Replies

allo allo still here

humidity still high here.. I’m busy watching cricket.. one day cup final from Trent Bridge.. managed to feed my pooch & make a cuppa whoop 🙌 another great day...

humidity still high here.. I’m busy watching cricket.. one day cup final from Tr...

adenough

•8 months ago

14 Replies

heart rate

Thanks for all replies.

whit

•8 months ago

Be the first to reply

Breathing problems

In 57 and have stage 4 copd and my breathing is a big struggle to go to the toilet and back gets me scared of how out of breath I am my fingers turn blue has...

In 57 and have stage 4 copd and my breathing is a big struggle to go to the toil...

Pugs4love

•8 months ago

17 Replies

HEART RATE

I check my oxy levels with pulse ometer regularly , i have noticed the last few days my heart rate when resting is 50/51 , is this ok ?

I check my oxy levels with pulse ometer regularly , i have noticed the last few ...

whit

•8 months ago

15 Replies

Emergency hospital admission.

Rushed into Hospital. Doctors baffled with low oxygen levels even though oxygen turned up to no 4. Oxygen dropping to 72 when walking slowly when on oxygen...

Rushed into Hospital. Doctors baffled with low oxygen levels even though oxygen...

garshe

•8 months ago

66 Replies

Odd episode.

This am: took my meds (nothing new), used my new but long prescribed Anoro. Then had breakfast. Suddenly, during breakfast, felt very ill, gasping for...

This am: took my meds (nothing new), used my new but long prescribed Anoro. The...

meicox

•8 months ago

6 Replies

Posts - Lung Conditions Community Forum | HealthUnlocked

Lung Conditions Community Forum

All posts for September 2023

Stories from a Hospital Volunteer - The Teddy Bears Picnic

diffuse idiopathic pulmonary neuroendocrine cell hyperplasia. DIPNECH. I was diagnosed with this in Aug 2023 by Royal Brompton.

New to the forum Peak Flow questions

fibrocis /pulmonary hypertension.

May lose my house

SR1 form replacing the DS1500 for certain Benefits including PIP.

Chronic

Fear and panic

No diagnosis

My Condition and OP - Update.

Bronchiectasis

cruising with oxygen

Final update

Positive stories please-I am training to play masters level field hockey - want to hear some positive stories (46yo,mildbronchiec, low lobes

Spooks In A Graveyard,

Don't think I can cope anymore

it’s me again

Palliative care

Update

A Simple Cactus Painting.

Crossstitch

Still in Hospital

Don't know what to do

Mild bronchiectasis, recent diagnosis, PE teacher, help, so sad!

allo allo still here

heart rate

Breathing problems

HEART RATE

Emergency hospital admission.

Odd episode.

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