In order to comply with new legislation the minimum age is now 18 years
Information posted on the site can support, but not replace, the relationship between you and your health care professionals (HCP). You can use information from the site to inform your discussions and exploration of treatment options with HCP’s. Always consult a HCP about changes to treatment or medication.
Our forum is a supportive, community for people affected by a lung condition and for those wanting to find out more about their lung health. Members should be respectful, honest and participate in supporting and learning from one another. You have a choice to join or to leave the community. The site isn’t a place to name, shame, or post negative feedback. We have a zero tolerance approach to bad language, insults, abusive or critical messages. Repeat breaches will result in the person responsible having their account suspended/permanently restricted. If you don’t like the way a member responds to you, ignore/report. No member of the moderator team should be subjected to verbal or personal abuse.
Content posted by individual members does not represent the views of A+LUK or of HU. Our online community is read by many different people. Your messages should be appropriate for anyone to read. When you post content, you agree to post information that is true and correct to the best of your knowledge. You agree to post information that is drawn from your personal experience. Be sensitive to the thoughts and feelings of others – something that you consider acceptable may be offensive to others. Content posted on this community can be read, used, reproduced and cited by other members of the site. You have the option to delete content you have posted. If you post third party information you are asked to provide references and links. Posts with no such supporting evidence will be deleted.
Content of posts
All posts should be on topic. Comments or discussions that aren’t may be deleted. Members who persistently break this rule will have their account restricted/suspended. Posts promoting or advertising social media groups will be removed. Posts or discussions about issues not directly linked to living with a lung condition should take place in the chat section. All posts in categories other than the chat and jokes/humour categories should have direct relevance to living with a lung condition. Repeat posts on the same issue made by the same member will be deleted. Moderators may tidy each category section in the community pages and remove old posts/lock them to future replies. Moderators will delete any content that is, or may be construed as, racist, homophobic, sexist, discriminatory or disrespectful.
Usernames should be respectful of the views of others. Moderators will delete usernames that are, or may be construed as, racist, homophobic, sexist, discriminatory or disrespectful. Usernames should be made up of letters or letters and numbers. Usernames shouldn’t be the name of a business, organisation or a registered product name. Usernames mustn’t imply medical qualifications or experience. User profiles should indicate the user’s country of residence to ensure that any advice provided is relevant.
Buying and selling
Buying and selling pre-owned medical equipment is complicated for reasons including verifying the source, confirming the equipment’s condition, terms of sale, guarantees, lack of protection for both buyer and seller, and reduction of device lifespan. Moderators will always delete posts offering to buy or sell equipment/medical devices.
We are a multicultural, multifaith community. Prayers and quotes from religious books/writings will be removed.
We don’t allow political posts or comments on the forum. These will be removed.
Information about new treatments, complementary or alternative therapies or research trials
Treatment or therapy discussed must be legal in the UK. Discussion about user’s experiences, knowledge and opinion about these areas is appropriate. Remember, no one should change treatment without first consulting their health care professional.
Requests for research projects/case studies/patient surveys
All requests for patient case studies, research projects, petitions or promotion of health information events need to be emailed to firstname.lastname@example.org. A+LUK will respond to confirm if the request can be posted or not. Requests that are posted onto the forum without A+LUK’s consent will be removed.
Posts regarding fundraising events for the A+LUK are allowed on the forum and should be posted within the ‘A+LUK Fundraising’ sub-topic. Fundraising posts for other charities or organisations will be deleted.
Content that members post on this forum is moderated by A+LUK and HU. Moderation helps maintain positive and open discussion. Moderators may edit or delete any post. Any comments/posts deleted by the moderators must not be re-posted or discussed in another post. Content should never be abusive, malicious or deliberately misleading. Posts may be edited/deleted even when not negative, abusive, malicious or deliberately misleading. This is to ensure the community is supportive and responsive to the majority. If you consider someone else is breaching guidelines please report it via the report abuse option. All feedback reports are read by moderators and it is their judgement on what action to take. Decisions made by the moderator are final. Moderators may but not always contact a member to inform them their contribution has been moderated but will not enter into discussions with members about action taken or not taken. Neither A+LUK nor HU is responsible for any injury or offence that a member may draw from another member's content.
HU can access all messages sent on the platform and may do so if it considers it important to the safe running of the site for all members. Content of private messages between members should not be shared or reproduced on the forum. If you have concerns about the content of a private message that you have received, you should contact a moderator.
Please don’t post personal contact information on the site. You may choose to do so in the messages module. Members should have general regard to their online safety. Information on online security is widely available e.g. getsafeonline.org/
Last updated: 02/09/2022