Haemoptysis

[Jk1957]

Hi

I have posted a few times over the years & Littlepom always gave me such reassurance as she also suffered from Haemoptysis ( coughing up blood )

I have finished a 14 day course of antibiotic but bleeding so slow to heal & I know infection is cleared .

Has anybody any hints on what helps them

Is it just complete rest . I find when I’m feeling well even a short walk has me back a bit .

Needless to say I’m off nebuliser & inhalers till it settles

Maybe I’m not that patient !

Many thanks in advance

JK 1957

[helenlw7]

I don’t have your problems, but I have use come out of hospital after 7 weeks, 4 with pneumonia, and 3 because my inflammatory markers were still high. Before discharge I felt fighting fit, but since coming home, even the slightest thing wears me out!

[Alberta56]

i hope someone will be along soon to advise you. Littlepom's posts still ought to be available under 'hidden', if some clever person can advise you how to access them.

[Jk1957 in reply to Alberta56]

Thank you Alberta

[Caspiana]

Hi there JK. I can't help with your question but if you use the search bar above you probably will be able to find some posts relating to Haemoptysis. I hope you can find some answers. 😀👋

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[Biker88]

Hi Jk, I have recently been blue lighted to hospital because of haemoptysis I had a 10 day stay in hospital, the bleed was on and off for 5 days before it stoppped. A CT scan confirmed the bleed was caused by cavitating chronic pulmonary aspergillosis, a rare fungal infection which was creating cavities in my lung and hit a blood vessel. I was treated with Tranexamic acid to control the bleeding and anti fungal meds. If the bleeding hadn’t stopped I would have had Embolization to stop it. I knew about the aspergillosis as had been originally diagnosed 10 years ago, it was stable but flared up again. I was on 24/7 oxygen in the hospital and lots of antibiotics, they got me off the oxygen to come home and I’m waiting for an ambulatory oxygen assessment at home. I was already very breathless and have inhaler and Oramorph to help, I have had to adjust life around the fatigue and breathlessness, mobility scooter, stair lift etc.

[Izb1 in reply to Biker88]

Sounds like you have had a tough time Biker88, sending big hugs and hope you get better soon, plenty of tlc and rest x

[Alberta56 in reply to Biker88]

That sounds gruesome. I'm glad your medical team were on the ball. Hope you will have a much better quality of life from now on and that the aspergillosis has been shown the door. xxx

[Jk1957 in reply to Biker88]

Thsnk you Biker 88. My flare up doesn’t seem to be as severe as your thank god . You have really been through the mill

Think rest is my best solution but it’s slow .

[Patk1 in reply to Biker88]

Hope u soon feel a bit better& that 02 helps x

[Biker88 in reply to Patk1]

Thanks, taking it very easy for now and not feeling too bad

[normannippy]

I have been given Tranexamic acid tablets in the past and they have worked. One tablet three times a day for three days.

[MoosterMoo]

Hi, I don't have the same condition as you buy I did have haemoptysis for almost a year. I'm not sure it's relevant for you but as well as taking it easy and keeping hydrated, I was prescribed Tranexamic Acid to help stop the bleeding.

[Izb1]

Think it just takes time for your body to recover , plenty of rest x

[Jk1957 in reply to Izb1]

Thank you & I think you are right .

[Jk1957 in reply to Izb1]

Thank you Izb 1 . I feel rest is my answer & Im not good at it ! I will see how it goes

[whirlingpit]

Sorry to say I don't have your problems either. Nevertheless, having read the replies to your post, I agree with Alberta56 in that if there is a way we can still access Littlepom's posts if indeed this forum does have a "hidden" section.

I have no idea what has gone on between Health Unlocked and Littlepom but I am sure that Alberta56 and myself are not alone in feeling feeling somewhat aggrieved at being deprived of access to L's regular words of wisdom, especially on Bronchiectasis!

[Jk1957 in reply to whirlingpit]

Thank you whirlingpit & I totally agree re Littlepom . She was a fountain of common sense & gave me such much appreciated advice & most important reassurance over the years .

[whirlingpit in reply to Jk1957]

Thank you for acknowledging me Jk1957. I wonder if the powers that be, at Health Unlocked, fully understand the help and support which Littlepom has provided to fellow sufferers over the years? Not to mention the value of her postings! Surely, if enough contributors feel this way and express these views, something could be done to reinstate her?

Having said that however, she may decline any olive branch offered and perhaps one could say, who could blame her!?

[Patk1 in reply to whirlingpit]

LP left of her own accord,as she has before

[whirlingpit in reply to Patk1]

OK Park - Point taken.

[Patk1 in reply to whirlingpit]

She may come back,she has before x

[Jk1957 in reply to Patk1]

Thank you Path 1.

Littlepom has given so much she is well entitled to rest and I wish her well & am most thankful to her for all her kindness & contributions over the years .