Trelegy

[Collie4]

hello , My GP is changing my preventer inhaler to Trelegy. Does anyone use this? I am rather concerned but my doctor thinks i will benefit from a steroid inhaler now rather than taking prednisolone when i have flare ups.

[Oreopepper]

Hi, Ivebeen taking trelegy ellipta for a couple of years now. Not had any problems, only thing I would say is to remember to rinse mouth after use as it gave me a sore tongue when I first used it. Hope it works for you.

[Collie4 in reply to Oreopepper]

thank you for reply. Yes i will rinse mouth after steroid inhaler,

[Kenko123 in reply to Collie4]

totally agree been on it for about a year now I always gargle after I take it only thing I find I do get a dry mouth

[Lol1944]

Yes great stuff, no problems after couple of years use. For me has made no difference to exacerbations, they just happen as usual.

[Ern007]

Not "Trelegy" but I have beem on steroid inhalers for many years, no side effects at all..

[Pollyposh1]

Yes I have it. I get on really well with it. 1 puff a day and if I don't take it i really notice the difference. Best one I've had.

[Collie4 in reply to Pollyposh1]

That’s reassuring, thank you for replying.

[Pollyposh1 in reply to Collie4]

More than welcome. Sure you will be fine.

[Shalz]

Hi Collie4,

I have been using Trelegy for some years now. I used to have the older ones!

I found that it works very well and did help the symptoms one gets with lung disease copd. Sometimes inhalators need to be changed to find the one that works best for you and your lungs!

Remember to rinse your mouth out after use.

I hope Trelegy works well for you!

😁👍

[Collie4 in reply to Shalz]

Thank you for your reassuring reply. I’m sure trelegy will be ok and hopefully work well and maybe ( just maybe), less exacerbations. I will remember to rinse after .

[Elpojohn]

I use Trelegy and so far so good, it prevents a flare up.

[Mavary]

I think that may be a good idea. At least the steroid will go into your lungs and not your body. I took some steroids after having a bout of pneumonia and ended up with a nasty spinal fracture. Apparently the steroids finished off my already weakened bones which I had no knowledge of. I’m still on a steroid inhaler now.

[Collie4 in reply to Mavary]

Yes, my GP is referring me for a bone density xray, as steroids can thin the bones i know. It’s quite a vicious circle isn’t it, we take steroids to help our breathing but could be damaging our bones. Have to be so careful.

[Mavary in reply to Collie4]

I now have seven spinal fractures. I’m on medication forOsteoporosis now.

[Chinadoll81]

Yes. I have trelegy. It works well. Blessings and love xx

[Collie4 in reply to Chinadoll81]

Thank you.

[Timberman]

It is a regular medication for our problems. There is a link below to the NHS about steroids. The dosage when taken for a flare up is much higher - 30mg pd tytpical - so this will be lower. Long term use will cause 'paper skin' issue so be careful and wear cotton gloves if doing anything risky.

Just one point which is slightly off centre - is your GP a specialist in COPD related diseases? If not I would strongly recommend referral to a specialists and that you take advantage of whatever COPD/lung/respiratory support there is locally. It is a very specialised field and the medications are constantly changing.

I have saspecialist and very immediate support from my local COPD team of specialist clincians and nurses.

nhs.uk/conditions/steroids/

[Collie4 in reply to Timberman]

hello, thank you for your reply. No, my GP is just a GP and sometimes i feel i know more than he does about copd etc , but i do have a respiratory nurse, who i can contact, and she reviews my copd every 6 months. Usually i have to chase this up. A couple of years ago i needed to see a consultant so i paid ( very expensive!), to see a private one who specialises in respiratory disease and i was impressed with the thoroughness, but i can’t afford to go private all the time unless i invest in private healthcare insurance which i may well do. In the meantime i will see how i get on with Trelegy,. I know that steroids can cause bone problems and thin skin, and as getting older it can be a problem.

[Collie4 in reply to Timberman]

ps: yes, i have often had to take prednisolone ( 5 day course, 6 tablets a day, 30mg a day.), so i guess using a steroid inhaler will be better than having to take steroids into system.

[PaulineHM]

Hello Collie4, Yes I was changed to Trelegy a number of years ago, It was fine until a deterioration meant that I needed a higher dose of inhaled corticosteroids (ics) then I was changed back to Incruse and Relvar.

Do rinse , gargle and spit after using it or the mouth can become quite sore and the voice hoarse.

Go well.

[Collie4 in reply to PaulineHM]

Thank you.🙂

[JulyAugust]

I have been on Trelegy Ellipta for a while now and I am guessing your COPD must be at stage 3 if you have now been prescribed it. I find it ok and (as others say) you need to rinse and gargle after inhaling. I prefer this to taking Prednisolone which I have found does absolutely nothing. If I could avoid anything with steroids in it I would do so, so in my opinion taking Trelegy is better than taking Prednisolone. I never have any exacerbations whatsoever since I’ve take this.

[Collie4 in reply to JulyAugust]

i’m not sure where my copd is at, but last time i had a check (last year), the nurse said mild/moderate. I am sure the weather has affected me lately and i can’t wait til it gets cooler .

[JulyAugust]

Oh, lucky you to be mild/moderate. I mentioned that because some health professional although I can’t remember who told me that one gets prescribed Trilegy when COPD gets worse as it contains steroids.