A few weeks ago I had a bad fall and required a CT scan of my chest. It picked up a few things that are being followed up and one of them required me to attend an appointment with my Resp Consultant at 9.00 am this morning!
I hoped he would also have time to discuss the issue I've had re the asthma nurse at the surgery wanting to change my inhaler from Trelegy to Fostair.
Well, we did discuss it and he is going to write to the surgery to explain that Fostair isn't the right inhaler for me and that, if I need a different inhaler in the future 'X' would be the one to change to (I can't remember the name).
So, it seems the CT scan picked up two lung nodules. My consultant is not concerned about the one in my left lung but wants more detailed info re the one in my right lung. If it's the same one that was previously identified, it may have grown - or it may have been scanned at a different angle, making it appear to have grown. It's likely that I'll have another scan in a few months time anyway.
xx Moy
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MoyB
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He is such a lovely, caring man, Carol. I've been with him since 2015 and he has always been a very good listener, which is a rare thing these days. He is always willing to explain what he is doing and why and I never feel rushed. He has made an appointment for me to go back and see him the first week in October and he said he would probably ask for me to have another CT scan before then.
i can only hope that the further examination of the nodules wil be good news . i have read recently about so many nodules being present and not being of significance but it will be worrying waiting. hope it doesnt take too long to find out.
I have an appointment to see the consultant again in October. I understand he will want me to have another CT scan around then as well.
Since I first had a nodule discovered a few years ago, I have had some (minor) concern about it as it was below the threshold size for regular surveillance. My consultant wants to get further information from the person who did the scan regarding the angle that the measurement was taken from ie was it measured across the shortest or longest point, and is it the same nodule that was previously identified. Only then will he be able to say whether it has actually grown since my last CT scan.
Meanwhile, I have read that most small nodules are insignificant and nothing to worry about, so I put it to the back of my mind as much as I can.
He is one of the loveliest consultants I've ever encountered and I trust him to do the right thing for me. He listens and acts accordingly. Lovely man! xx Moy
Sorry to hear about your fall Moy and hope you are now ok. Good to hear your consultant is looking after you well and hope you get on with this new inhaler, please keep us updated x
I'm not having the new inhaler at this point as he doesn't think I need it. He is writing to the surgery to tell them that Fostair is not a suitable inhaler for me and he will let them know which one to prescribe if I need to change in the future.
I'm almost fully recovered from the fall, thanks. My consultant has told me to stick with the inhaler he prescribed for me and is writing to the surgery to tell them which one to change me to if I need to have something different. He said that the Fostair is NOT the one for me as it will not have sufficient (something - I can't remember the name) for my bronchiectasis.
My consultant told me that Fostair, which the nurse wanted me to change to, is very suitable for people with mild asthma but not for me! I have chronic asthma with fixed airways as well as bronchiectasis.
I have been using Trelegy for a year now and have found it the best so far. As I still have occasional asthma attacks which I have managed to bring under control with Ventolin, my consultant is happy for me to remain on it for now.
If the attacks become more frequent or less manageable, he is writing to suggest another inhaler that could be prescribed, but I won't know what that one is until I receive a copy of his letter to the surgery. I'll try and remember to let you know.
Feel free to ask me again in a week or so if I haven't come back to you on it.
xx Moy
PS Don't forget that the consultant's views are relating to me and my condition and may not be the same for everyone. I do think knowledge is power though, so am happy to share the info with you. It might be something you could look into further.
Hi Moy, thank you for all the information. I know we're all different but it's good to know what's out there. Can discuss the different inhalers with my Resp team when I see them. Thanks once again and take care of yourself 😊❤️xxx
I'm glad you are recovering- may the good progress continue. So glad you have such a fine consultant and that he has instructed your surgery to keep you on Trelegy. Hope all continues to go well. xxx
I've only just read this but thank goodness for your consultant! I'm sure that there must be some lovely practice respriatory nurses out there but when I saw a consultant, they said that even if there's a hint of asthma if you've got COPD then Trelegy (or a simlar drug with steroids) is a must.
Luckily for me, my lungs are clear but they discovered an overian cyst during an unrelated scan so I'm being monitored every 3 months too. Perhaps we can measure our growths together? 😊
Isn't it amazing what they can find these days? My husband was given an urgent MRI to check for prostate cancer a few years ago. A few days later he received a phone call. 'We are pleased to tell you there is absolutely no sign of prostate cancer - however - your lungs have a lot of fluid in them so you've been referred to cardiology.'
He went on to be diagnosed with aortic stenosis and now has a pacemaker and a replacement aortic valve! And he's still here! Without the treatment he wouldn't be.
So, sometimes these 'incidental' findings are a blessing in disguise. I'm taking the view that my recent fall may have done me a favour as they have found so many 'incidentals' that are now being followed up.
Keep in touch and let me know how you get on when you're growth is monitored!
Yes, that's a very good way of looking at these things. Very glad that your husband's heart problems were found in time, I've just read in the news of another poor young man who dropped dead of cardiac arrest and he was only 26.
Fingers crossed that your lung nodule turns out to be benign and I'll let you know about my cyst.
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