Following On From My Final Thread On ... - Lung Conditions C...

Lung Conditions Community Forum

55,270 members66,033 posts

Following On From My Final Thread On CT AND Pet Scans. Never Rains but It Pours,

Ern007 profile image
30 Replies

10 months ago since I posted my final CT and PET SCAN threads (2)

I highlighted 16 months of hell with shadows on lung which spread to right lung. Cancer was my fear but in the end they said it was more scarring.

So I though I could live with that and carried on with my garden, changed it all to tropical. palms and canna's ect.

But staring last October I had signs of Bladder of kidney problems. I rang 111 and was told if no better mondey, go to GP come April they came again, I was given antibiotics by the urgent care doctor for a suspected kidney infection. Come May the symptoms returned - more antibiotics.

Again the symptoms come and this time I phoned my GP and she returned call as said I was being referred to Urology,

I had first exam and I was able to see inside my bladder and Bladder Cancer was diagnosed,

So I had to go in August for a "Trans urethral removal of bladder tumour (TURBT)"

The cancer was scraped out and was a success but the tumour had to go to lab.

A follow up confirmed that the cancer was aggressive but was none invasive. Which means confined to bladder. I have to have regular "Trans urethral removal of bladder tumour (TURBT)" procedures to make sure it's all gone and not returned, they can return but then removed,

A rotten procedure but at least they are on the case, support is really good.

I have posted this as I have not been on very much, I was so to speak preoccupied,

As for my COPD much the same but with the new scarring or whatever, I am more breathless than I used to be but not as bad as many,

Written by
Ern007 profile image
Ern007
To view profiles and participate in discussions please or .
Read more about...
30 Replies
CDPO16 profile image
CDPO16

What an eventful year for you Ern. It's good to hear from you and I hope that the next 12 months will be much better for you. Best wishes.

Ern007 profile image
Ern007 in reply to CDPO16

Thank you CDPO16 - I had almost forgot COPD but it did come back to bite,,, keep well

Caspiana profile image
Caspiana

Sorry to hear this Ern. But thank goodness they found it. I hope you can regain your strength band slowly get back into things you enjoy doing. All the best to you. xx 🍀

Ern007 profile image
Ern007 in reply to Caspiana

Thank you. Yes I intend to enjoy as much as I can, I have been lucky in garden with tropical plants, and got they came through last winter,, take Care :-)

Katinka46 profile image
Katinka46

Sorry to hear this, a miserable business, but you are one tough guy, and thanks for posting.All the best

K x

sassy59 profile image
sassy59

Bless you Ern, so sorry to hear of your ongoing health problems but good to know your being well looked after. Very best wishes to you. Take care xxx💜😘

Ern007 profile image
Ern007 in reply to sassy59

Thank you - I was overwhelmed but now light at the end of the tunnel. Keep well sassy

sassy59 profile image
sassy59 in reply to Ern007

Thinking of you xxx

Damon1864 profile image
Damon1864Volunteer

So sorry to hear about your continuing health problems but so pleased to here you are getting the help and care needed. You are very positive and determined wishing you all best have a lovely day and take care 😊 Bernadette and Jack 🐕 xxxxxx

Ern007 profile image
Ern007 in reply to Damon1864

Thank you. Have to be positive don't we? Mind you I am in a better place than 6 months ago,...:-)

johnderby profile image
johnderby

Hi Ern. Sorry to hear about the cancer but so pleased they are keeping on top of it. I hope these next 12 months turn out to be better for you. John

Ern007 profile image
Ern007 in reply to johnderby

Thank you johnderby - I have a NEWS score of ) which is good. my cancer is aggressive but not invasive if caught in time..

Ergendl profile image
Ergendl

Good to hear from you again, but sorry to hear how much you've been in the wars. Glad the medics have given you a viable treatment plan.

Ern007 profile image
Ern007 in reply to Ergendl

Thank you, yes I am lucky to have a plan. Nice to be posting again..

Shirleyj profile image
Shirleyj

Sorry to hear you've been so poorly, wishing you well. Take care x🌸💮🌺🌹🍀

Ern007 profile image
Ern007 in reply to Shirleyj

Thank you appreciated,

Buzzytruk profile image
Buzzytruk

My sympathies to you ,. I remember the trauma my late husband went through with water works problems . But you are on the right road now, and can continue with your garden which sounds wonderful........

Take it easy ,and good luck ......

Jo..☺️

Ern007 profile image
Ern007 in reply to Buzzytruk

Thank you, my garden has kept me sane despite the flying pests, I remember my father with waterworks problems it was ghastly - much better options today.

MoyB profile image
MoyB

My goodness, you've had a lot to think about this year! I'm glad to hear that they are able to deal with the bladder cancer. Not a pleasant procedure, but at least they are able to keep things under control.I daresay the breathing issues have been taking a bit of a back seat while everything else has been going on but at least you got answers about the shadows and know it's not cancer which must be a blessing.

I hope the next twelve months are better for you than the last!

xx Moy

RoadRunner44 profile image
RoadRunner44

Hello Ern, i was worried at the start of your post wondering where it was leading. I have to say, like you, I am much more reassured . It took a long time but finally they got to the bottom of your problem. It appears you are getting excellent care now with regular procedures to keep the cancer at bay. I'm delighted for you. Keep looking after yourself, eat well and do some exercise if you can. This way you are helping yourself while helping the medical team to help you. Best wishes.C x

Ern007 profile image
Ern007 in reply to RoadRunner44

Hi Road Runne44...Thank you, I try and eat well and healthy foods.. I have a key worker, and problems she is a bell away. ern

peege profile image
peege

Goodness thats such a lot to have to live through. I'm so pleased the treatment has been successful Ern007. One positive is that from now on you will be monitored. Very best wishes to you. Peege ××

Izb1 profile image
Izb1

Not been a very good year for you Ern but at least you now have had treatment for the cancer and have been reassured that it is treatable must be a weight of your mind. Time for a little tlc, rest up and look after yourself x

Ern007 profile image
Ern007 in reply to Izb1

Thank you. After that procedure you are washed out for a while, now I need some exercise .

Aingeful profile image
Aingeful

How scary for you! My auto immune function if faulty and has caused damage to my kidneys and lungs. I am on infusions of rituximab every six months, prednisolone, dapsone, and a recent course of steroids. Up to last Christmas I was as fit as a flea. I get horrendously depressed at times but have to keep reminding myself there are others a lot worse off. Good luck with your treatments.

Ern007 profile image
Ern007 in reply to Aingeful

Thank you and look after yourself. I have CKD but seems to be stable at the moment.

Alberta56 profile image
Alberta56

Best wishes for a much better future. I'm glad they've zapped the cancer. My neighbour has been living with a similar sounding problem for several years- they keep a close eye on him to stop the cancer recurring. Hope the COPD will behave itself, so you can take it easy most of the time except when tending your exotic sounding garden.

Ern007 profile image
Ern007 in reply to Alberta56

Thank you. I changed to exotic in garden as the battle with slugs and insects was being lost. Todays insectisides don't workk..

HighGables profile image
HighGables

Sorry to hear your diagnosis Ern and happy that they have it under control. Look after yourself and enjoy your garden. Jax🐶x

Ern007 profile image
Ern007 in reply to HighGables

Thank;s for that. Garden keeps me sane, whatever hobby is important when ill.

You may also like...

It never rains, always seems to pour.

probably be more severe if bad damage had been done\\" I must be going soft, I have had three...

So Yet Another Follow Up - Starting I think 2020 - Bizzar,

tumor to be removed but - I have Bladder Cancer in situ G2. That is a high grade cancer and on...

BC Which Hospital Update _ and eyesl

first TURBT that was my first after my diagnosis showed after the tumour was removed, the cancer...

Possible Problems With Bladder Cancer Treatment

for admission to have tumour(s) removed. This is done with a procedure called TURBT and rigid...

My Cancer and other health issues update.

over my bladder cancer which is high grade and had spread to the inner linings of my bladder. I was