Re: nucala biologic injection

[coral12]

Hi .not been on for awhile.i went to hosp for checkup after having covid a month ago in which I got infection in left lung .3weeks of steriods and 2weeks of antibiotics later x-ray show in fiction no different .going to do a CT scan .IV been unstable asthma for years .consultant wants to put me on nucala injections it's a biologic every 4weeks I fit the cryteria.im on relvar Ellipta high dose .tiotropium high dose an ventolin .and lots of courses of steriod tabs .just wondered if anyone is on the injections

[Karate109]

Hi Coral, I started Nucala injections February 2021 and they have improved my asthma massively. Before I couldn’t laugh or walk a few minutes before becoming breathless and coughing. I get them delivered and kept in my fridge and inject myself every 28 days. No side effects. I hope you get positive benefits too.

[coral12 in reply to Karate109]

That's for the reply. I hope it makes a big difference also .glad it worked for you

[Gwen30]

Yes I did a research trial of the injection 6mths in total. My peak flow went from 150/170 to 200/220 . No longer on it and slowly reversing my peak flow downwards.😔

[hoven in reply to Gwen30]

Gwen why did you stop it?

[Gwen30 in reply to hoven]

The research trial ended I have EA asthma

[coral12 in reply to Gwen30]

Why don't docs put u on it permanently if it helped

[Josephone]

My views are exactly like Karate 109. The miracle drug for me insofar as asthma is concerned. Hope that helps

[coral12 in reply to Josephone]

I hope it will be for me .at least some improvement

[hoven]

I started Nucala nearly a year ago, initially muscle weakness which they said would be the steroids I occasionally took over the years. stopped it for a while and the weakness went away. started it again a few weeks later and it was even worse. weakness in my legs which is still there. I have now stopped it. I think if it suits you it is worth taking. I wish it had suited me! good luck

[Utakemybrthaway]

Wow. I didn’t even know that could happen. I am right now in a chest infection and at the end of all my meds and it actually still hurts. But I don’t think it’s Covid. Do you cough up blood when you have a chest infection?

[coral12 in reply to Utakemybrthaway]

Usually cough up blood if it's phuemonia

[janet65]

Hi coral12, Yes I'm on Nucala too. I've just done my 24th injection. It's so easy at home every 4 weeks and have them delivered.

For me, absolutely no side effects but I feel 100% better. Before July 2020 when I started my life was non stop steroids and antibiotics. Now I continue using my fostair inhaler as usual but that's all.

I have a 6 month consultation via a video call from the London hospital who treats me.

Good luck and hope it helps you too.

[coral12 in reply to janet65]

Thank you for reasurance .glad it worked for u .hope it works for me .have u ad any infections since of IV read

[janet65 in reply to coral12]

No I've been perfectly well since I started the injections. I had whooping cough aged 4 and that's when my asthma started. I'm now 71...that was a lot of years of really bad health.

[Kniterbug]

I started my first injection on Monday so far ok. Early days. My asthma isn’t as bad as I see on here. The price of it is unbelievable but if it works it’s will be worth it I hope x

[HannahBenson]

Hi Coral, I started Nucala for my eosinophilic asthma in 2020 and at that time, I had trouble breathing and could not leave my apartment without having to come back into the air-conditioning and air purifiers. Nucala works for me . I live in NYC and have to go to the pulmonologist to get the injection. I wonder if I could self inject and if that is something that is tied into my medicare coverage. It would make it more convenient but I suffered for so long, I am just grateful that it works and that I am off prednisone at long last. Good luck.