Disappointing..

Hospital appointment was a total disaster. They had lost or erased my scanner CD so Dr. Lazor was unable to give an opinion on the LAM. I could see nobody had read my file.

The young intern was more concerned with my post nasal drip. I said I had had an endoscopy that I had no polyps and was diagnosed with perannual rhinitis years ago.

I complained that I had waited 3 months for that appointment so the least was to be prepared.

So I left without any diagnostic.

Dr. Petitpierre my local specialist has resent it and I asked for a copy as well. I told them I am leaving for the summer holidays on the 21st so they should get in touch with my doctor give him the report.

I may try the Lyons hospital for a second opinion. It's not too far. They are a center for cystic pneumopathy as well. I mean I need to get to the bottom of this and get the adequate treatment. I must say the 3 x2 seretide 250 a day and the atrovent have kept infections at bay.

Wishing you all well xx

Fran

[flossiew]

Oh Fran. You must be really exasperated and disappointed I just wish there was more we could do... Sending hugs ❤ xx

[Hidden in reply to flossiew]

Thanks Flossie. What can I say..taking it in my stride and moving on, looking for alternatives ☀️xxx

[Asthma-girl]

Oh no, it's so annoying when that happens.

[Hidden in reply to Asthma-girl]

Thanks Asthma-girl yes it was a waste of time and I had built up my hopes you know, well until next time xxx

[Kitten-kat23]

I am so sorry you are having to go through this. What a performance.

I truly hope you get this sorted out soon.

[Hidden in reply to Kitten-kat23]

Thank you very much Kitten, you are all being so supportive it helps a lot xxx

[Shezxx]

Oh no sorry ur having so many problems. Amazes me how some docs nurses dont read the notes. Unbelievable. 3 months

[Hidden]

Thanks Shezxx yes I was fed up yesterday really careless..anyway I'm still waiting to hear..🙃🙃

[StaceyJ]

Hi Fran, I was thinking of you yesterday and was going to drop you a message to see how you were getting on! I'm pleased that the meds are at least keeping the infections away so that's a positive in all this. Hopefully they'll sort out the scan and maybe then your diagnosis and treatment can start in earnest,

Take care of yourself - Stacey ❤️ X

[Hidden in reply to StaceyJ]

Just saw your message!! Thank you Stacey so kind of you 💓

[Pippin100]

Sorry to hear this, must be so frustrating , hope they can get things sorted for you soon

Best wishes

[Hidden in reply to Pippin100]

Thank you Pippin got the answer now so I will have further tests in September. Looking forward to a quiet summer. Wishing you well.