Bit of an update - in need of a little support.....

Heya guys,

I haven't really posted on here for a long time really, but kinda need to update you guys and possibly get a little support from you guys.

I have had a really rough and horrible couple of years really, but the last few months- last year really, have really taken the biscuit with too many really unwell admissions to both High Dependency and Intensive Care, where they have horribly scary conversations with you

I am feeling a little scared and really quite vulnerable just now, due to the severity of my asthma and the really scary sudden attacks I have had of late. The only thing I

can really see as a positive is that my lovely team have seen how fast I can become incredibly unwell.

I seem to be on a real mismash of drugs just now, my consultant and I have sat down and streamlined a little though, but still seems alot. I am on: Seretide 250/25 4 puffs a day, steroid nebs, pred, uniphylline, montelukast, azithromycin (prophylactic 3x a week), seretide, god knows how much ventolin etc - inhalers and nebs and then I have atrovent nebs instead of spiriva when I am sick. I also have an epi pen for when I run into trouble

I have a lovely consultant, but the whole respiratory team are amazing too with email contact to both him and my asthma nurse. As well as a very strict action plan. I also have a plan being written for when I present in A&E saying what they need to do and when - to prevent either under or over treatment. They know how distressing I find critical care, so the idea is to avoid going there *just in case* and leave it until I really do need it. Which I can cope better with. There is also talk of permanent IV access, but we are trying to hold off this for a while and only use long lines.

Just feeling a little overwhelmed at the minute! Sorry for waffling! xxx

[Hidden]

Sorry to hear you're so unwell at the moment. I hope it gets better soon. Hugs

[Hidden]

Hi laura,

I know exactly how you are feeling, as i am going through exactly the same. I have had asthma for 21 years, an it as vey severe until i was 17. i the had nothing significant until April this year and since then i have had 8 admissions to hdu and itu, the last one 3 weeks ago where i was intubated for three days and my family were prepared for the worst.

my mediction includes, ventoin, ipatropium bromide, flutiform 250/10, montelukast 20mg, fexafenadine 180mg three times a day, unpylllin 800mg, caarbocystein, omeprazole, 40mg prednisalone, and also a home nebuliser. i will be starting the anti ieg injections soon.

i am also feeling very vulnerable, and afraid of going out to far from home, as i also deteriorate extremely quickly.

my local emergency department know me now and i get treatment very quick.

my consultants are amazing, as are my respiratory nurses. the staff on the ward where i am a regular are also amazing and act very quick if i have an atack.

it is so unbelievably scary not being able to breath especially when there is no warning.

do not be sorry for waffling, you need to talk about it, i know i do. i am finding the recovery period hard, as i am so weak and tired all the time, and feeling nauseous too due to the high levels of medication.

hope you start to feel better soon.

emma