What age did your asthma symptoms very first develop? I read that some adult onset asthma actually started in childhood and reccured in adulthood
What age did your asthma symptoms fir... - Asthma Community ...
What age did your asthma symptoms first develop?
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I had it until age 4, then nothing, then it returned at age 29 following a viral pneumonia infection.
Ok, its so random isnt it. I hope they can create a cure in our lifetime its the only thought that motivates me, i have crswnp too. Hopefully they create a biologic that has a permanent effect
I honestly do not mind taking drugs for the rest of my life as long as I can breathe. As a biochemist, I doubt we will have a "cure-cure" (as in take a pill/injection like an antibiotic and walk free), b.c. the disease originates in our own bodies, is controlled by many genes and pathways, and differs so much from person to person.
I wasnt diagnosed till 20s but think I've always had it,couldn't do running as couldn't breathe,collapsed,same with swimming; constant sore throats - prob tightness etc frm asthma; regular coughs+ chest infections,v bad allergies and rhinosinusitis. All have just got worse& led to further problems. My son+ his son both had asthma frm being born really
Interesting reading. Similar here Pat, I remember having an incessant barking cough from being a small child, many bouts of bronchitis (untreated) and was a fast sprinter until halfway up the track when couldn't breathe & everyone sailed past me. Humiliating but I think it must have improved because by my twenties I remember my future husband laughing when I lagged behind climbing up Malvern Hills. My chest felt as if in a vice, I never imagined it was asthma , thought it was heart related. Incessant coughing in late pregnancy, coughing until vomiting (in Libya) which I thought was a stomach bug. (Was finally diagnosed in my late 40s, lungs went downhill from menopause). Then my son had his 1st ever cold/cough/bronchitis age three then then became asthmatic. He 'grew out of it' in his teens but throughout his life a cold always turned into a chest infection. Luckily his child seems okay but they live in hills in France above the Mediterranean so air is cleaner/drier. 2 granddaughters have asthma.
My stepfather thought it funny to blow cigarette or pipe smoke in my face to bring on coughing fit, I had measles badly about 6. My maternal uncle had bad asthma (my mum should have realised). Now have added Small Airways Disease and CFS
That's a late diagnosis peege.how awful re stepfather ((Yes I use to get awful barking coughs.gd job diagnoses of asthma are better these days.my great grandma died frm asthma x
Oh I've just remembered as teenager if I ran gor a bus,I'd struggle to breathe,many times,couldn't breathe but never taken to a Dr.my other son had childhood asthma + hayfever whn young,not as bad as my youngest son+ grew out of it.over recent yrs,he's had a problem with irritating cough, whn talking,walking which is difficult with his job.his gp has told him he thinks its asthma+ to do a months trial of salbutamol inhaler4x day for a month - almost immediate relief!which is gd,that it helps& has a diagnosis but I imagine Yr same Peege,doesn't feel gd that another one's inherited it x
Ah yes same here, running for London buses in the 60s, smokers on the top deck and there were still smogs in the 60s too. I wasn't taken to doc either. My son lives in South of France so fares (fairs?) better in the lovely climate - I supply him with ventolin for when his colds turn into chest infections because he's unlikely to get one sorted for himself. He's got terrible sinuses though like his father and me. My girls are alright thankfully although youngest had pneumonia, pleurisy and measles badly as a teen & gets chest infections (she won't listen to me about taking vitamins etc 🙄). When they're older & I'm dead & gone I'm sure they'll all say "we should have listened to mum"! Middle one has always trusted me healthwise so I've been able help with her asthmatic daughter.
Gawd, remember winter hockey matches? Double lesson out in all weather in our school knickers . I used to wear two pairs.
I didn't get diagnosed until my 40s, but I now realise that the occasional breathlessness/loss of consciousness episodes I had as a child were asthma - I remember the first one being when I was around 10 or 11. I ended up in A&E several times over the years, but by the time anyone came to look at me, I was feeling better and was sent home as a timewaster/drama queen! It never really went away, I just learned what caused it and took great care to avoid setting it off, and just tried to 'breathe through' any episodes since I'd learned it was pointless going to A&E. Then I had Covid early 2020 and went from occasional breathing difficulties to constant so went back to hassling the doctors - after spending two years being told it was anxiety and I needed to practice mindfulness, I finally got a diagnosis Christmas 2022.
That's awful Mandevilla x
LysistrataAdministratorCommunity Ambassador
I was 7 the first time and it was all very normal asthma that was treated and didn't bother me that much. My mum took me to the doctor because I kept coughing, especially at night. This is apparently an absolutely dead giveaway for asthma, especially in children. The GP heard me coughing and said 'that's asthma', then asked my mum about family history. Which just clinched it because my mum's family is stuffed full of asthmatics - not her but loads of others at least a few generations back.
By the time I was at uni I decided I had grown out of it and didn't need an inhaler. Spoiler alert: I hadn't, and I now know a few episodes were asthma - I was very lucky they weren't worse given no inhaler!
Came back with a vengeance after I got swine flu aged 23 - but this time atypical and gradually more and more severe, and now still not controlled. Took ages to diagnose because of being atypical, even with my family and personal history of asthma. One consultant told me dismissively that 'most preschool wheeze goes away, it doesn't mean you had asthma or have it now'. I said well that may be the case, but since I was 7 it wasn't preschool wheeze and it was diagnosed as asthma and behaved as such. That consultant (and others) was a great one for making pronouncements on things he couldn't possibly have any useful information on.
So I think of my asthma in 2 parts, but I don't know that it necessarily recurred in adulthood so much as it was already there and got stirred up by the H1N1 flu virus. Oddly I had flu when I was 14 and felt absolutely horrible but it didn't do much to my asthma - but when I looked it up that strain was different.
Homely2Administrator
I had some childhood breathing issues, then in my 30s and 40s a number of episodes that put me in hospital overnight but were not diagnosed as asthma, they thought it was cardiac, due to a family history of cardiac.
Every now and again I would have periods of a few weeks where I would have chest and breathing issues, but they would solve themselves, though were a little scary.
Then in my 50s the issues went on for longer and longer, until work would not let out to clients without somebody to accompany me, and my system really started grinding to a halt. Cardiac department then during covid diagnosed asthma, and I was sent to my GP asthma nurse who doubled my peak flow in a month, what a relief that was.
I was diagnosed at 12, and just bobbed along with a brown inhaler and ventilin. There's one time I remember as a teenager that I probably should have ended up in hospital but it didn't seem my GP at the time realised the seriousness and neither did I. But mines definitely gotten worse in the past 10 years...now 45.
Mine started when I was 36 an steadily got worse in the summer months .I did not have it as a child
Described as a chesty baby, first attack at age 4 yrs when my parents got a dog. Hospital Drs diagnosed asthma- told my parents that the dog had to go, or they wouldn’t treat me! ITicked along ok enough so long as I avoided triggers (animal dander, smoke, perfumed things etc.) Occasional exacerbations, chest infections, steroids/antibiotics- each time leading to an increase in dose or change of inhalers. Typical presentation of symptoms until I was in my 20’s when it became dry, tight chest and breathing difficulties - no longer wheezy. Treatment in A and E/at GP now variable as symptoms no longer typical. Was fit, active and strong.
Seemed harder to keep controlled throughout mid 30’s to mid 40’s. (Turns out that was also peri-menopause.) Attack in 2019 and have yet to recover. Now under hospital respiratory care, 5 different daily inhalers, never comfortable, life completely restricted. Added in a breathing pattern disorder, silent reflux , inducible laryngeal obstruction. Then long Covid , now investigating Fibro myalgia too. Now aged 49yrs, 3+yrs post-menopause. Ugh!
I was first diagnosed at about 7 and took Intal as preventer and Ventolin as reliever. It all disappeared when I was 12 and was, consequently, childhood asthma. Sadly, it returned with a flare up at age 19 and I have had it since then. I'm now 63. It was reasonably well controlled with Trelegy until November last year, when I had a series of chest infections meaning Clarithromycin followed by Prednisolone followed by Clarithromycin until I was taking both concurrently. After a nasty (resus) flare in March, I have now moved on to Dupixent, Trelegy, and salbutamol as preventer. It's eight weeks and the monoclonal antibodies seem to be having effect.
So, I'm one of the ones who started in childhood, stopped, and recurred in adulthood.
I am a triplet circa 1954. I was the smallest and developed asthma around the age of 5 yrs. every winter along with my late father suffered from bronchitis that rendered bed rest. I believe at that time we took a pink coloured tablet called Lederkin. The asthma then disappeared. I had had skin tests for allergy. I was allergic to feathers and dog hair. At the age of 21 I had brain surgery to fit a shunt ( hydrocephalus ). My parents bought me a cat while I rehab’s. That signalled the return of my asthma. I was told that I never got rid of the condition it just lay dormant. I am now 69yrs and just lately I have suffered. Repeated exacerbations requiring steroids and short antibiotics .
Went in at 24 to have my daughter, came home with a bad chest and a baby ,6 weeks later diagnosed with asthma ,constant chest infections then on including pleurisy, pneumonia, all blamed on the fact I had whooping cough when I was 4 or passive smoke from dad smoking in the house etc i am now 58 .Last year was on steroids /antibiotics practically every month,dusgnosed at asthma clinic as adult onset eosinaphilic asthma ,put on biologic injection jan 24, which is about to be changed as benzrilmub has stopped working already .
Mine was diagnosed last year aged 76! A bit of a shock to say the least. I had whooping as a child & diagnosed with mild Bronchiectasis aged 65 which didn’t give me much trouble just a few minor chest infections, otherwise always fit & healthy. Hospitalised in May ‘23 with serious breathing difficulties for 15 days & diagnosed with adult late onset asthma triggered by a viral infection, not COVID. It took a few months to get my inhalers right, I had every adverse reaction on the leaflet plus some of my own! Took me over 6 months to feel well again & under control, On Fostair 200/6 4 puffs a day, Still working on getting my fitness levels up with walking, yoga & breathing exercises. After reading the stories of people on this site who have struggled all their lives with asthma I should be grateful for all the healthy drug free years I have had but instead I found it really difficult to accept, not as invincible as I thought. This site has been a life saver for me, I am so grateful for all the help & advice I have received.
I'm 71, living in Spain. I've always had a cough in uk and chest infections. Only diagnosed as asthma in Spain 2 yes ago. My father was a smoker and had cold. I wondered if I had it but never smoked
Mine started aged 20. Nothing before and I did track and cross country running in my teens. I put the trigger down to a serious motorcycle vs van crash with serious injuries requiring ventilation for 3 weeks.
my earliest memory of asthma was about age 5, I don't know if I had it earlier, but to my knowledge there were no inhalers at the time, but as it was mainly exercise induced it was a case of resting and keeping calm. The tricky bits were the twice yearly big attacks when I was confined to bed usually for about a fortnight, treatment being some form of tablets that had to be given every four hours and through the night so my poor mother had to get up. Then by early teens the big attacks had stopped and by late teens so had the wheezing. Unfortunately after 25 or so years it came back but without the wheezing!
I had asthma as an infant in the 1950s , then moved to a mould free new house, and it disappeared. Came back again in November, last year, at the age of 70, and got very bad, very quickly. Inhaler provided only short acting relief, and was put on Relvar inhaler, which is a combination of steroid and long acting bronchdilator. That improved it a lot.
In April, last year, I was put on finasteride to shrink my prostate. I did a search and found many posts on Reddit stating that finasteride was making them breathless. Stopped taking finasteride, and my asthma was cured.
I was diagnosed with “wheezy bronchitis” as a little baby and was so sick they even tested me for cystic fibrosis (which I thankfully don’t have). I was treated with nebulisers of various meds and intramuscular injections and IV meds while in hospital, which was often. I spent a lot of time in ICU. I could only walk a few steps as a young child and was eventually diagnosed with asthma. I don’t know what age as I was too young to remember.
In those days my asthma was thought to be just allergic as well as reacting to humidity/damp, cold air and exercise such as walking. My parents were told I probably would not live long. How wrong they were.
Despite frequent hospitalisations (and too many intubations and ICU admissions to remember the number), I somehow managed to become a competitive figure skater. I represented my state at Australian national championships when I was 15. I often would have to race off the rink during training to neb and sometimes go to hospital due to the exertion but I refused to give up, and it paid off. I developed a massive amount of cardiovascular fitness and retained as much lung function as possible due to sport, singing and playing woodwind instruments, all things we were told were ridiculous aspirations until I achieved them.
Asthma dogged me my entire life and I sustained severe airway remodelling and permanent obstructive small airway disease (and crap spirometry). When I was 33, my life changed for the better at that point because I was lucky enough to be put on Xolair (omalizumab), luckily funded by the hospitsl pharmacy board. There was no other way to pay for monoclonal antibodies. Xolair treated the atopic component. I had very few admissions for a few years after that but did still need daily nebs of salbutamol, ipratropium and budesonide as well as montelukast and sporadic courses of oral steroids.
But things deteriorated again when I was 40 after spending a nightmare 6 weeks “holiday” in America with pneumonia leading to acute hypoxic respiratory failure and a tour of the American hospital system. The next year I was admitted to resus in the emergency department several times and had 5x 2-3 week admissions in 6 months with infective exacerbations of asthma.
During one of these admissions I was diagnosed with severe eosinophilic asthma and the Xolair was switched to Nucala (mepolizumab), which treated the eosinophilic asthma but not the atopic component. I also was diagnosed with tracheobronchomalacia which had been misdiagnosed as various silly things for years including poor spirometry technique of all ridiculous things. So that saw me on permanent 24/7 CPAP and night time oxygen with prn oxygen during the day when my sats dropped a lot during exacerbations or exertion.
A couple of years ago on Halloween, I had an attack that needed two adrenaline injections to be able to inhale the neb at all. I, probably stupidly, refused hospitalisation. I was too afraid of viruses.
A few months ago, at age 47, my igE tested at 3734 when it should be <25. My skin was horrific and asthma deteriorating. I became dependent on oral prednisolone, salbutamol and ipratropium nebs 4x a day and budesonide (steroid) nebs 3x a day as well as prn salbutamol. At this point I was put on Dupixent (dupilumab) injections and finally this is treating both atopic and eosinophilic asthma plus my skin is clear and I am not so beside myself with itching and broken skin that I was relying on diazepam to be able to sit still, never mind sleep. Dupixent is a wonder drug for me.
My steroid nebs are currently twice a day, ventolin and atrovent 2-3 times a day, still on montelukast and recently carbocisteine but I don’t need oral steroids and usually no prn.
My spirometry is better than it was (still crap due to permanent damage and tracheobronchomalacia) and I am able to function in day to day life. I even take short breaks from my CPAP and to sing and play the guitar. It was years since I was last able to sing decently.
Incidentally, I was told by my asthma nurse at the hospital that singers and swimmers with severe asthma are in much more danger than other people due to the ability to speak in sentences or phrases with hardly any air. I can speak with my hand right in front of my mouth and not feel any air on my hand due to vocal training and several times ended up intubated due to emergency department doctors not realising how poorly I was because of this and silent chest. I usually don’t wheeze much if at all.
That’s the long history of my asthma and what was diagnosed at what age. Sorry if it was too much to read 😹
Wow - that's quite a journey! I'd be impressed with the skating even if you didn't have all that going on with lungs! Even more so with all that to deal with.
I was never sporty, just did singing and oboe and had mild asthma as a child - more severe now with plenty of admissions but not your level. As a result I have great personal bests for spirometry and peak flow, but that just makes me look better than I am and get ignored until I'm really struggling. I'm also good at keeping peak flow and supposedly sats up while stuff goes to pot in the background.
I do think that while it can be good for us to have that capacity, it can be misunderstood. I think it is misleading that perhaps we can seem ok when we aren't (I also don't wheeze mostly and I go quiet, which can also definitely be misunderstood.) So it's interesting what your nurse said re more danger for people who can control their breathing.
My ability to do spirometry goes out the window when I'm symptomatic (vs when I'm struggling without noticing when it's not so great numbers done well), but this always gets blamed on poor technique/dysfunctional breathing instead of any recognition of how it relates to my breathing. I mean maybe it is that but it's not the main issue for me either - just that I can't do it optimally in that situation. I have excellent FENO technique mind you, but that's easier when you can see it (and it's still physically very demanding when lungs are rubbish).
So glad to hear you finally found a drug to handle both sides of your asthma. I know quite a few people who have allergic and eosinophilic asthma, or allergic plus another kind, and it's not well recognised that both can be there.
Isn’t it ironic that the reason you developed better lung function than you otherwise would can easily become a curse when you need help and they brush it off.
I was told my barking cough and poor spirometry was due to reflux, vocal cord dysfunction (speech pathologist they referred me to said I don’t have it), anxiety, exaggeration and poor technique. During an admission in 2018 i was put under the professor of respiratory medicine as he was on rotation. He ordered the correct testing and diagnosed me with tracheobronchomalacia. The weird part of my spirometry graph is a spike or “notch” as i breathe out when my floppy airways close. It’s a recognised part of TBM. No poor technique here. I’ve been blowing spirometry since i was too young to remember when 😹
But yes it’s frightening how doctors and nurses not realising how poorly you are under the apparent control could be life threatening. I think there is way too little modern education about asthma with non-respiratory doctors. It scares me because I am now DNR so next time is the last time. Here’s to breaking the odds again 💪
Sorry to hear that - crossing fingers for you that it's smoother sailing now!
I find even respiratory doctors can be clueless about asthma too - sometimes I prefer the non-respiratory ones as they seem to be better on average at recognising what they don't know about asthma. Many of the respiratory ones I've met seem to think they know absolutely everything and cannot be contradicted - and are prone to blaming me for anything wrong with spirometry etc. (It's always anxiety or dysfunctional breathing if they're not sure or don't want to deal with it...).
That’s actually so true about some respiratory doctors. It annoys the crap out of me when they refuse to listen and learn if they don’t know something. And it’s usually our fault and not theirs if they don’t recognise things. Sigh. Thankfully my current doctor is amazing! I have a pretty good and humble GP too. Very lucky.
I'm glad u r finally getting benefit frm biologics.i have severe eosinophilliac asthma,type2 ventilatory failure - on bipap, and tbm,edac+ sm Airways disease too
Oh my, you also have a lot to deal with. Is treatment controlling your symptoms well or do you still struggle a lot?
Biologics help asthma and reduces mucous from that,which benefits airway collapses but fasenra wears off 2wks early so I'm nr 3wks of 8without it's help.ive severe bronchiectasis too,along with hemi diaphragm, and lost a lobe of lung so lot going on.hoping to change frm fasenra x
I hope you find a biologic that doesn’t wear off early. You have more than enough to deal with. Makes me feel lucky. Sending love and light xx
I didn't get asthma until I got bronchitis in my mid 20's; the bronchitis went away but the asthma stayed. I also didn't develop seasonal allergies until I was 20 or 21. I was in fields and barns as a child and teenager and never had any symptoms at all, so I did not have allergies or asthma as a child.
I was diagnosed with asthma when I was 36 yrs some weeks after birth of asecond child.
I had returned to a very damp house due to a relative drying laundry on radiators when I was in hospital. The house was saturated even the new baby clothes had moisture under the cellophane wrappers.
I was a very healthy child with only one doctor visit due to some skin rash that I was told was allergy to pears! I was seven and we never had pears in those days. Hayfever developed in my 20's when I worked in an office surrounded by fields. This became full time rhinnitus when I moved house in my early 30's.
I was on two inhalers for about 9 yrs but with coming of internet I found a breathing therapy that worked for me (Buteyko). I will always have ventolin when travelling but find a nip of whiskey is enough to relax tightening bronichals.
My father had asthma. He had been hospitalised as a teenager with pneumonia. He lived in the south of England then. He moved to a more northern damp city in his 30's and I think that made things worse especially with the air pollution levels back then. In the 1960's there as a treatment involving a series of injections and he benefitted from this. I dont think inhalers were around then. He died of 'old age' at age of 94 yrs.
No childhood asthma but onset 65 brother 32 and Mum 40. No previous history.Grandson had brittle asthma from 6 months to age 13 then the common variety from then on. Who knows. Maybe get a reliable answer on an NHS site.
I was diagnosed around mid-30s when I took up running and found I couldn't. Throat felt like i was breathing through a straw, chest felt like it was closing up, and had so much phlegm. Was never diagnosed as a child, but had the same symptoms whenever I did PE at school, especially cross country.
Nothing at all until aged 47. Plenty of chest infections as a child, but never any struggles with asthma like symptoms. - my dad didn't start with asthma symptoms until his early 50s.
18months-2years old, according to my mother. Put my schooling Way back, when I started Primary School, due to days that I was too ill with asthma or bronchitis.
I think I was about 5 when I was diagnosed but I had recurrent bronchitis before that. I became symptom free at around 19 but then it kicked off again when I was 30 following a nasty virus, got it under control by age 32 and its kicked off again at 37 following covid. Now 39 and described as difficult to control but being investigated for severe
I was diagnosed with asthma in 2001.
I had been prescribed Beta Blockers for an over active thyroid just prior to going on holiday to Crete. Everyday, we walked to the beach, using the route we had used in previous years. That year I got stuck walking across the sand to the path. I couldn't breathe. I just had to stand in the searing sun with my feet burning in the sand until I could regain enough breath to get onto the path. I ditched the Beta Blockers and was ok for the rest of the holiday!
On my return home, I found I had an appointment with the endocrinologist to discuss my new thyroid diagnosis. I told him that I had not been taking the Beta Blockers and it was he who told me that I had described an asthma attack and I must get back to my GP post hast to have it followed up.
Tests at the surgery confirmed asthma.
However, I believe I have had asthma all my life. I used to be shouted at by the games mistress when we were sent for a run around the rugby pitch as I could only ever run a short distance, then had to stop as was wheezing and coughing. I thought this was normal, so didn't feel the need to tell Mum and the games mistress just continued to shout and make me feel stupid.
I've never been a great walker! Trying to walk at any speed has always caused me to wheeze. As I'd always been like it, it didn't occur to me that there may be a medical reason for it. I thought I was just unfit.
xx Moy
I was 50 when diagnosed, though looking back it was probably there for at least 8 years before that. I'd tried to take up running but could never do more than 90 seconds without needing to stop and catch my breath by walking for a couple of minutes. I could repeat that for up to 4 miles though. Just thought it was me being an oddball (nothing new).
One evening in November 2017 I was at a pub with my husband and brother. I only had a couple of ciders. We left to walk the 1.5 miles back to my parents, something we've done quite often and I can still do usually. We'd barely got 100 yards when my chest went tight and my breathing felt weird. Not wanting to freak out the menfolk I slowed down and made it back to my parents where it all settled down again. Thought it was my heart, but can't remember if I mentioned it to the GP when I got back home. The following month I had an orthopaedics appointment and, due to total gridlock, I left my husband driving and I got out the car and jogged to the hopsital. Was quite proud of myself because I ran for longer than my usual time. But I felt slightly winded and out of breath for the rest of the day. And that was the start of the rest of winter being more of the same.
Several GP appointments, blood tests, x-rays, etc, including one appointment where I couldn't get my breath to speak and asthma was mentioned. It runs in the family but it usually only affects the boys/men. Spirometry was fine. The nurse said it didn't look like asthma to her. Anyway, the GP gave me a peak flow meter, then Clenil a couple of weeks later. The peak flow looked a lot better. It took a proper asthma attack in the May to get my hands on ventolin.
By the December I'd been changed to Fostair 100/6 MART, and added in Montelukast. 18 months ago the Fostair was changed to DuoResp 160. In November 23 I had a trial of Spiriva. Hated it and it didn't like me much either, ended up with my sinuses infected and a course of steroids to calm the lungs down again.
Last week they gave me trimbow to try because I was starting to need more of the DuoResp more often. I've needed ventolin 6 times in that week so far BUT it's pollen season and it's (been) hot so I'm hoping that's why and not the trimbow not suiting me.
i was diagnosed at 12 years old, but fairly mild and well controlled. I remember some asthma issues as a teenager, but I didn't seem to worry as much about asthma exacerbations back then! As I've gotten older and since turning 29-30, I noticed much worse allergic asthma, especially in summer, and this past year has been the worst yet, since a bad virus in october. Really struggling with it all and hoping I can get the help I need soon!
I was 3 and use to get rlly bad hypoxia. I used to have 2 or 3 trips to a and e and then from 11 to 14 years it was dormant. Now I'm nearly 18 and have severe u controlled asthma and don't know what to do. I'm on trimbow and hv had 15 courses of pred, 3 in patient admissions and 10 asthma attacks requiring nebulisers in the last 8 months.
Diagnosed with eosinophilic asthma in my 40's after suddenly being unable to exercise ( I used to do a lot). Lots of trial and error and now I take dupilimab though it is not as good as steroids. I still work full time but getting fed up with the constant struggle.
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