Feel like I've been run over by a bus. - Arthritis Action

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Feel like I've been run over by a bus.

1715 profile image
1715
2 Replies

Hi, I've not posted before although I do enjoy reading your posts and can relate to many of them.

Where to start! I have trouble walking as I've had a foot injury for the past 6 yrs, been to various specialist's but still have the same problem, I've learned to just live with it, then I start coming down with flu like symptoms, fatigue, aching joints, I would have problems with both my knees, then it would go to my shoulders etc, I just put it down to being run down and have been unlucky and caught the flu yet again.

It was my husband that first said that I would be extremely unlucky to get the flu yet again and suggested I make a doctor's appointment.

Didn't really get taken seriously until I actually found a doctor that listened to what I was saying she referred me to a rheumatologist.

This appointment didn't go well, as again they didn't listen to what I was saying, and when he suggested I wouldn't still be suffering from pain in my foot from a broken bone 6 yrs ago, myself and my husband just walked out, as I didn't even have a broken bone in my foot which really proved he hadn't listened to a word I had said.

Back to square 1! I told my doctor how I had got on and she was disgusted, she said she would send me for a second referral, I refused, ( didn't want to go through the same patronizing experience again) she said she wouldn't send me to the same hospital and suggested she send me to Addenbrookes.

The appointment came and I had decided if things didn't go well this time I would just live with it.

Addenbrookes were brilliant, listened, understood and for the first time I felt I wasn't going mad.

They diagnosed seronegative rheumatoid arthritis and Raynauds . Put me on Hydrocloxychloroquine and a dose of steroids. After a few months I felt relatively normal, ( think I'd forgotten what normal had felt like).

I used to have redness on both my cheeks and nose, but on the Hydrocloxychloroquine I no longer get it.

I have other symptoms which I always forget about once they've disappeared until they come back again.

I sometimes get a weakness in both my legs and arms and feel if I don't sit down I'm going to pass out, I have a dry mouth constantly and a horrible taste on my mouth. I'm not good on my feet at the best of times and falling down the stairs became a common experience. I fell down the stairs three weeks ago and this time made a good job of it, I fell on my bad foot and can no longer stand on it, I get around on my hands and knees at the moment, I won't give up and will keep trying to get up on it. I'm not an easy patient!

The housework takes so long to do now it's really frustrating, and yesterday I woke up feeling as if I got run over by a bus, guess I'm in a flare, I hope you can understand what I've written, don't think I do myself at times!

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Rosepetal60 profile image
Rosepetal60

Think about your situation and how you can organise yourself to have a bit of peace of mind. Get yourself a cleaner who is willing to do a bit of home help stuff. Even if you have her only 2 hours a fortnight, it will help.

Are your drugs causing your dry mouth? It could be so. Set yourself some goals. Mine is sorting through drawers.cupboards and the like.

Yep, I'm the same about forgetting the symptoms once they've disappeared until they come back as they do. I can no longer kneel due to injury to one of my knees and other one painful at mo so can't even kneel for 30 seconds on the better knee cos I don't have a better knee anymore.!, which is so frustrating. As I have a lot of boxes stored under 2 double beds.

How about a second hand mobility scooter to help you get around. Lots of research needed but interesting learning something new. The 4 mile per hour ones are for off the road ones. You could join a mobility shopping group in your nearest town/ city to try one out to see if it would help you.

NessieRC profile image
NessieRC

I have 2 small mobility scooters. .one which I fly with and one which I can take apart and it goes in the car..gives me freedom! I whizz around my city centre and shopping precinct and it is great as I'm not exhausted. I bought it second hand from a local mobility centre..had it 8 years..worth its weight in gold :)

Research on e bay or Google it!... good luck :)

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