PE and warfarin. Scared to take it. ... - Anticoagulation S...

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PE and warfarin. Scared to take it. Scared to stop taking it.

Amber79 profile image
4 Replies

I am 37. I had a simple outpatient procedure due to a miscarriage and developed a small pulmonary embolism in my right lung. I now wonder if I had already had it due to the high amounts of birth control used for long periods of time before the pregnancy. I was diagnosed with the PE one month ago. I was admitted and put on heparin injections and sent home on xarelto. I developed extreme blurry vision and was told at ER that it must be coincidental my eyesight was getting bad and it had nothing to do with the xarelto. I chose to not take 2 doses and the blurry vision stopped. I demanded to be switched to warfarin after researching how long it has been around and that it is closely monitored and has an antidote if you develop an internal bleed. I thought I was doing great. I developed extreme sharp chest pain and they did a CT scan and the blood clot was gone. Perfectly normal CT scan. I had blurry vision returning and it so happened at the visit for the chest pain my INR was 3.7 when my target range is 2.0-3.0. I skipped a dose and tonight will take 4 mg instead of the 8 I am directed. Tomorrow I will go take an INR. My gut instinct tells me to stop the warfarin and take aspirin and eat a lot of vitamin K. I love vegetables anyway. But it is very scary because I really don't know (and neither do the doctors as far as I'm concerned) how high risk I am for another clot. I'm 5 weeks past the procedure that could've caused it and over 4 months off of the birth control that I believe caused it. Don't know what to do. After skipping one dose of the warfarin I have not had one drop of chest pain today. And my joints don't hurt. I hate these drugs!!!!

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4 Replies
daisyd profile image
daisyd

Please take medical advice on your medication it can be dangerous to stop

I am on Warfarin and self test it takes a few days to effect blood eating vit k foods is ok as long as you have the same amount each day

Please look at the Hughes foundation web site it's here on the healthunlocked site under sticky blood. But most importantly see your Doctor

moo196 profile image
moo196

Can't write much as have to get to work.

Discuss this with yr doctors.

Healthy eating...ie all the green things you mention contain vitamin k which thickens the blood...hence you may need more warfarin to get inr in range.

Took me 6months to get within range.

May write more later

jackdaw50 profile image
jackdaw50

Would advise avoiding self medication in regard to your warfarin dose/diet. Speak to your doctor again and take advised dose. INR can fluctuate from time to time. Find the most receptive staff in your surgery and speak to them. Sometimes nurse practitioners are good for advice and getting a positive response from GPs.

Kleasmile profile image
Kleasmile

INR 3.7 its nothing scary, all the other health issues that you have, cant be from warfarin.Im on blood thinner from 11 years..dont stop the warfarin, ask your doctor..he knows your the situation better.

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