Voice tremors

[quilling]

I am a 60 year old symptomatic female ALD carrier. I have had what has been termed voice tremors for 5 years. When I am in severe pain or upset I lose my voice completely. Is this happening to anyone?

[jolocny Volunteer]

Hello!I haven't had actual tremors while speaking, but do experience days that I'm not able to raise my voice above a whisper. Using Zoom for family and business calls has brought this to the forefront. It definitely makes conversing difficult!

J

[Sue95]

My mother who had the ALD gene had voice tremors from her mid 70s onwards with particular difficulty speaking on the phone. This may have been dysarthia which is a known problem for MS which has similarities. I don't think this has been documented as a symptom of ALD/AMN but there are still many unknowns. Sue

[quilling in reply to Sue95]

Thank you . I have reached out to my neurologist and he says now theyare thinking hand/arm /voice tremors may be a form of Parkinson's rather than ALD. Another neurologist says get an MRI. Bottom line they don't know. There are other women I have met that have this difficulty and trying to see if I can find more men or women here.