I don't want to sound ignorant as I haven't been on here in a while but I suffer a lot of headaches and I am in terrible back and leg pain first thing in the morning and I am struggling to get motivated. My symptoms started at age 42 and I understand that a lot are suffering worse than I am and my symptoms are milder than most but was wondering "how other carriers deal with the pain and stiffness".....also the weakness I am experiencing is deterring me from most things now and I am feeling really down which is having an impact on my family. (5 yr old daughter, 19yr old son and Husband). I lost a son at age 13years of age with ALD 13 years ago.
Much appreciated thanks