So a fella contacted me on facebook yesterday claiming to suffer "ALD" and in his fifties been suffering for like 2 or 3 years.
I told him its a shame he suffers, but he was lucky that he had lived his life before this struck, he said he didn;t think he was lucky. He also sent me 4 "ALD awareness" articles about him in which I found inaccurate information (as far as I know) and pretty irrelevant as it was a lot of his life story and not so much about AMN. I don;t know where they had been published but nowhere important or interesting I imagine.
I asked him if he had a wheelchair, he said "no". I told him you can beat almost all the symptoms of AMN instantly if you get a wheelchair and take your legs out of play. He is gonna ask his wife.
I don;t what it was that got to me. I know this isn;t a competition and "I am sicker than you". Not at all. And as a lot of you know I am more than happy to talk to anyone anytime about AMN. But I seriously don't have time for uninformed people, who don;t help themselves and publish inaccurate articles raising inaccurate awareness and don;t know the actual name of the disease they suffer from.
Sorry if this seems unjustified. Venting is healthy.