Venetoclax and ibrutinib trial
This is great news but I’m thinking why I should continue taking the medication for another 7/8 month if there is no evidence of CLL....
MF , ET JAK2
My day is not so happy sadly I got my BMB results yesterday and I have MF along with ET JAK2. My fear is I have just read on McMillon site th...
Allopurinol when first taking Hydroxy
Since writing a post I have finished my 3 weeks ' radiotherapy now for breast cancer, during which time my Hydroxy for ET was stopped....
Hydroxycarbamide,Allopurinol Pegasys and DRIVING!
Hello Folks Firstly update on my MF Diagnosis with ET last Saturday, Royal Wedding Day Post. Saw my Haematologist on Wednesday and asked ques...
High Uric acid 8.7 and diet
I was just diagnosed with high Uric acid . I have chronic stage 3 kidney disease....
New to the CLL site
I started with Allopurinol ( 300 mg ) on August 18th and then Imbruvica ( 280 mg ) on August 28th....
Ibrutinib and joint pain
I have been on Ibrutinib to treat my CLL for six weeks now. I am also on 100 mg of Allopurinol to remedy the Uric Acid build-up....
Hydroxycarbamide and Allopurinol
I collected my first Hydroxycarbamide prescription yesterday from the hospital pharmacy. I was also given another drug called Allopurinol....
Hi everyone, I'm 53 live in Gibraltar and have recently been diagnosed with Polycythaemia Vera. My bone marrow biopsy confirmed that I was Ja...
Ibrutinib / Venetoclax (Ramp up)
Hi everyone. Well its been a while since the last time I posted....
Medication side effects
Hi there, sorry to touch on a rather sensitive subject but as you all know. all medication can carry side effects some mild, some strong and ...
Hi . I take a few different medicines and some family n friends tell me to take 75 mg dispensable aspirin daily....
When I 1st started taking ibrutinib I was prescribed 300 mg allopurinol. But as my initial cramps and aches faded after a few weeks I never t...
Status update 17 months post-FCR
I've seen a few posts recently from folks starting or considering starting FCR. During 5 yrs of watch-and-wait, I had a second opinion with a...
"Damn Foreign Food", spluttered Biggles indignantly! Hydroxyurea the first 10 days
There he was at 4000 feet, not a care in the world, when suddenly..... Biggles performed a desperate falling leaf manoeuvre, and expertly sid...
I was prescribed Allopurinol for gout and searched the Internet for its effect on prostate cancer. See abstracts from two papers below....
AFIB, Eliquis and Gout
I am scheduled to visit my EP Dr. again in July 2018 and was hooping to hear how other AFIB patents treat their gout flareups....
Starting Allopurinol with Ibrutinib?
He has enlarged nodes on his neck, his spleen is enlarged, and his WBC has gone from 42,000 to 72,000 in less than a month and 91% are lympho...
ET or Secondary?!
hi there, my name is Ammaro, I'm scared shitless.. Diagnosis: Essential Thrombocytosis Age:47 Sex: male Personal: No smoker – no alcohol Chro...
How to deal with Ibrutinib rash
I've emailed my onc ( who is not a CLL specialist ) and I see him next week but I'm wondering if anyone else has had to pause IB due to rash....
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