Do most people on Imbruvica have to take allopurinol also?
I have been on IB for almost 3 months and I really don’t like taking allopurinol and I’m wondering how long do most people have to take it an...
Venetoclax and Allopurinol
I am wondering how long you were kept on allopurinol after you started venetoclax....
Venetoclax and ibrutinib trial
This is great news but I’m thinking why I should continue taking the medication for another 7/8 month if there is no evidence of CLL....
Ibrutinib and a rash
They started her own ibrutinib and she developed a serious rash....
PV jak2+ and new to all of this!
Yesterday I seen my haematologist and he confirmed I have Polycythemia Vera and my jak2 test was positive. I am on hydroxycarbamide, allopuri...
Allopurinol when first taking Hydroxy
Since writing a post I have finished my 3 weeks ' radiotherapy now for breast cancer, during which time my Hydroxy for ET was stopped....
MF , ET JAK2
My day is not so happy sadly I got my BMB results yesterday and I have MF along with ET JAK2. My fear is I have just read on McMillon site th...
Best time of day to take hydroxy/allopurinol?
I’ve just started medication this week and not sure if I should be taking it all at the same time or different times of the day. I am taking ...
Going back on Hydroxy
Hi everyone, update on my last post when you lovely people gave me some constructive answers . As promised I'm reporting back after visit to ...
I was diagnosed back in May last year with MF Calr type 1 symptomatic without enlarged spleen and was started on Ruxolitinib 20mg BD, 300mg a...
Hi everyone, I'm 53 live in Gibraltar and have recently been diagnosed with Polycythaemia Vera. My bone marrow biopsy confirmed that I was Ja...
My Treatment Update
So my dosage was upped to 500mg Hydroxy everyday except Mon/Tue/Wed. On those day I took 1000mg....
Anyone with hypothyroidism and gout?
Hi, First post, recently diagnosed with hypothyroidism at 40 despite few symptoms after routine tests ( TSH was 125! I've read that the two d...
High Uric acid 8.7 and diet
I was just diagnosed with high Uric acid . I have chronic stage 3 kidney disease....
New to the CLL site
I started with Allopurinol ( 300 mg ) on August 18th and then Imbruvica ( 280 mg ) on August 28th....
Hydroxycarbamide,Allopurinol Pegasys and DRIVING!
Hello Folks Firstly update on my MF Diagnosis with ET last Saturday, Royal Wedding Day Post. Saw my Haematologist on Wednesday and asked ques...
Medication side effects
Hi there, sorry to touch on a rather sensitive subject but as you all know. all medication can carry side effects some mild, some strong and ...
Ibrutinib and joint pain
I have been on Ibrutinib to treat my CLL for six weeks now. I am also on 100 mg of Allopurinol to remedy the Uric Acid build-up....
Status update 17 months post-FCR
I've seen a few posts recently from folks starting or considering starting FCR. During 5 yrs of watch-and-wait, I had a second opinion with a...
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