What a great find....

[Zadoc]

Just trawling through my messages and this caught my eye so I opened it up and am so pleased I did. My name is Sally, I am 65 and I have had ME and fibromyalgia for nearly 10 years, finally diagnosed 7 years ago. Why don’t they believe you?

So I have just been doing a bit of gardening I probably don’t need to say anymore....

I am still confused about why, over now a co side Rab,e number of years, both these conditions are not really taken seriously, There has been some excellent research on how ME affects vision...my ophthalmologist just glanced at it and put it aside but it is SO logical. I use the abbreviation ME because I think that really does describe the core of the condition, a form of neuropathy affecting the pathway to muscle activity.

I hope I have not gone on too long..

I live in Suffolk with my cat, Meow...as you will see

[Dizzytwo]

Hello Zadoc, it nice to meet you and welcome you to our friendly group. We may be small in numbers but big in heart

I have had Fibro for 30+years and do think things have become better with a lot more understanding from many more of the GPs and specialists. But with Fibro and ME there is still a lot that don't get it. I guess it depends who you talk with.

I sometimes think the medical profession just feel hopeless. There are no tests and no cures for those suffering with this awful chronic illness. I guess many feel if it doesn't show up in tests it just doesn't exist. I would just like to point out this only my personal opinion.

I am fortunate I've always had a GP who is fully engaged with my fibro and ME

I hope we see you around and your fur babe is a real cutie xx

Mo

[Zadoc in reply to Dizzytwo]

Thank you, well if you have had it for thirty years your views should be very important and I am glad you have a supportive GP. I only moved here 6 months ago so I don’t really know my GP but my previous GP’s have been less than enthusiastic, when I was diagnosed, I was seen by an amazing GP who specialised in ME and worked at the Hospital for Rheumatic Diseases in Bath. She was a breathe of fresh air, gave you back your identity. But since then I have only encountered a lack of interest in the condition, I think of the body as a form of complex machinery, so both these conditions are a form of malfunction, so, for example testing muscular response to certain activities might show a difference. However, I am a get on with it girl so I shall stop my moaning and get back to my knitting!

[Dizzytwo in reply to Zadoc]

Hey you moan away LOL I'm a knitter too. Just got to be doing something to occupy the little grey cells lol. A bit worried more than usual at the moment. My neighbour a few doors away was taken to hospital this morning with the virus. She had been self isolating for 20 days. Hoping she pulls through. Horrible times we are living through that's for sure xx

[Zadoc in reply to Dizzytwo]

Yes, I hope your neighbour recovers