treatment?

advanced pc with bone Mets

Broke hip to find out it is

Cancer

Hormone Therapy on Eligard want to change to Orgovyx

also on Nubequa

had one session radiation because of broken hip

Seemed to cause fluid retention and lymphedema gained 53 lbs during one month hospital stay and 30 more in 3 months

Docetoxal postponed

now getting teeth fixed before bisphosphinate

question Pluvicto? To add

Or the chemo…

Question Immunotherapy? To add

Dr. Very hesitant for any new testing

Initial tests showed multiples of lesions pelvic spine femur

Dr said last may prostate cancer 4+3 Gleason

98 PSA

So stage 4 pc with lymph and bone Mets

Finally new test of bone scan and ct scan

See results Monday

Asked for more tests but this is it besides initial mri and biopsy

No pet psma scan or anything else

Don’t know how to proceed what to learn

Wondering what to do next

PSA has gone from 98 to five since hormone therapy started.

What’s next is it curable?

Thanks

[Tall_Allen]

How many metastases other than pelvic lymph nodes?

[Hidden in reply to Tall_Allen]

innumerable scerotic lesions

Is what they said . Dr won’t give a psma pet scan and when I asked about genetic testing (I’m asking about everything) he said no the said he already did the genetic testing. What? Would have to have my knowledge or concent then told me I won’t condition chart they don’t put it there. I was so much in shock that I believed him. It’s just crazy. I’m looking for a new oncologist. A second opinion but anyone has got to be better than that. This is my life

[Hidden in reply to Hidden]

It would t be on my chart so I couldn’t read it there I wouldn’t find it because they don’t put there I said you did that the genetic test already? He looked right at me and said yes.wow

[Tall_Allen in reply to Hidden]

Ask for a hard copy. Genomic tests usually don't find anything that can be tackled with existing therapies.

The standard of care is triplet therapy:

prostatecancer.news/2021/05...

[Hidden in reply to Tall_Allen]

Yes I’m taking nubeqa one Orgovyx supposed to start chemo. Is that triplet therapy?

[Tall_Allen in reply to Hidden]

Yes.

[Hidden in reply to Tall_Allen]

also thanks for responding

[leo2634]

I've been on 6 month Eligard injections since 2018 my PSA has been 0.1 ever since I'm also on Zytiga Prednisone Provenge infusions back in 2019 although side effects are many and quality of life has been and interesting changes the key word is life I'm still kicking. Never give up never surrender Leo

[Dunkiemac]

Hello SatNt2025,

Looks like you're new to this club. Glad you found us. It's the nature of our disease that we're all a bit different. That said, here are my experiences for a bit of perspective. I'd been physically active my whole life. I confess my diagnosis was shocking and scary. Here I am 2 years later. Doing pretty well actually.

I was diagnosed, Nov. 2022. Obviously PCa. See my profile for details. Tests 45 days apart showed PSA high and rapidly increasing. PSMA tests showed me lit up like a Christmas tree from head to knees. Some lymph issues as well.

Treatment started immediately with a shot of firmagon. Within a couple weeks, was feeling much better. PSA started receding. Went on abiraterone and Lupron. Have been on them ever since. Gratefully, I've had minimal side effects. Also did 3 rounds of docetaxel. Had expected more but had a bad reaction. PSA down to 0.10 Jan. 2024. Steadily dropping from there to "undetectable" now.

Like you, I had extensive dental work done. Multiple extractions. Docs agree my bones are strong. Don't need bisphosphinate, Yet.

So, what next? Well, for me, there were significant dietary changes. Cut out a LOT of junk food and carbos. Also started stationary biking. 5 days X 40+ minutes. Light weights as well.

I'm fortunate to have a great medical support team. Over 2+ years, they've all said I'm in much better shape physically than most men they see. Likely a result of that lifelong participation in sports. I've lost some weight. Gained some back recently. That can be typical for long-term abi users. Just started getting those lbs. off.

Looks like you're over a decade younger than me. That's an advantage for you. Hopefully, you've started recovery from the hip. Stay with it. There's hope. It's a grind, but there's hope. There are a lot of men in this online community who have been living with advanced PCa for many years. Cheers!

[j-o-h-n]

Greetings SatNights,

Would you please update your bio. All info is voluntary but it will help you and help us too.

Thank you and keep posting!!!

Note: Remember there's always a Sunday morning.....

Good Luck, Good Health and Good Humor.

j-o-h-n