This will be my second infusion, but the other one was 6 months ago so I forgot how to prepare. I did a search in our database and came across the need for heavy hydration and taking tylenol about 30 minutes beforehand. Any other tips would be greatly appreciated.
BTW, the first infusion gave me a 103 fever the next day and horrible gastro issues for a few weeks. Zometa was recommended by my MO as a way to preclude any "bounceback" following the end to 4 years of Xgeva.
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I get a Zometa infusion every three months. I do nothing before treatment and nothing after. I might be fortunate to not experience any side effects. I look at it as a form of solitude for 15 minutes. Good Luck and keep your head held high.
Ive had more than 60 zometa infusions …. Herze what i do. A few hours before you go ( 2-3 ) take an OTC decongestant. I found that chlorpheniramine worked well for me. Take a large bottle of Gatorade or any replenishment sports drink and soon as you hit the halls out of the infusion clinic, start guzzling the sports drink. Drink a lot of the sports drink, until you elmnate all the zometa in your urine. ( 2-3 days probably ) This is the basics and good luck. If anything else happens you need answers for , pm me or get back to me in this thread. I’m leaving the rest out because it’s only important if you need it
I've read about your ordeals with Zometa. Sorry for all that you've had to endure. I sailed through all my Xgeva infusions, and had hoped for similar results from the Zometa. Unfortunately, that was not the case on my first dose. Hopefully, my body is better prepared this go around.
Yea , I think most people have fewer issues with zometa than I did. I’ve discovered I’m a “ super responder “ and what happens to me isn’t typical for most. Lol. I’m sure you’ll be just fine, hopefully with fewer SE’s . There are ways to deal with the “ pain train “ if it happens , but sounds like it won’t happen for you . This from your prior experience. I never regretted it, I know it was helping me every time.
The only negative effects I have ever had were bone pain, and tiredness. Live like you normally do, but just take a nap or take a day off if you are tired and feeling "sick".
My MO gave me Xgeva (denosumab) instead. I believe insurance initially rejected coverage but I believe ins coverage was approved upon appeal. I could be mistaken about it ultimately being covered by my ins. as I am fortunate to have backup coverage via my certification by the World Trade Center Program as a result of 9/11.
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