Tomorrow I am scheduled to get my 18th injection of Degarelix. Despite the monthly frequency, I’m much happier with the SE’s from Degarelix than from Lupron or Eligard. A few months back I pointed out the ironic brand name Firmagon to my nurses, and now they have to joke about the name at every implant session.
Last month we got to tossing around names that were rejected by the marketing team at Ferring Pharmaceuticals. Through some Internet sleuthing I was able to uncover the team’s actual list of discarded names. In no particular order they are:
• TeenyPeni
• NeuterED
• MiracleMelons
• ShrinkyDinky
• Mini-me
• Cumnomore
• StubbyBubby
• Caztrate
• FlacCid
• Bonergonner
• IffyStiffy
• LymphDik
Any low hanging fruit (or berries) that the Ferring team missed?
Written by
Carlosbach
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We have to ride out the rough spots buddy. I know all of us have them . Probably the longer you deprive your body of things it needs …. The more it punishes you. My palliative care doctor started me on duloxetine ( cymbalta ) this week, she says it should help with a lot of things ….. neuropathy pain, bg, mental …. other stuff.
Thanks for asking buddy, I’m definitely not dancing in the halls rotflol. My fluffy has more lint lately lol. Hope you are feeling well and as stable acbe.
Hope the cymbolta helps with your pain, as well as other stuff. Seems like when your plate is full life just gives you sideboards so nothing will slide off your plate.
Glad to be back in a place where I can joke and play around some.
Hope you can feel the love overwhelming you brother.
Rotflol. I’m glad to see that you are on a “ up “ cycle for a change buddy . Seems like you are getting trashed a lot recently. You deserve some “ up “ time for a change. This stuff can be the chits sometimes…huh ? At least we can get on here and vent and brothers will get on and commiserate … knowing exactly how screwed up we feel. lol. Thank goodness for this group and all the brothers here helping each other. ( sad any of are here but glad we are here helping each other lol )
Life continues as it will whether we have advanced cancer or not. I was diagnosed with Stage IV a little over four years ago, and since then I have experienced 3 events that were more traumatic than dealing with my diagnosis. I did a lot of work to maintain my life positive outlook, and continued to grow through it all. However, my son's sudden death last year at only 43 rocked me.
I'm thankful to our forum members who were there for me, and have helped me heal.
Roshi …. Oh dear. Rotflol I don’t have “ titles “ here and since married initiates can’t be called priest anymore ( monastic rule change back in the early 80s ) , the term nowadays is minister if you are married. lol there used to be a number of married priests back in the day, after all, traditionally priests of the order back in Japan can have wives but Rev Master Jiyu Kennett changed up the rules decades ago. These days I’m just plain ole me , nothing extra lol. Maybe KDC …. Kaliber da croaker , that’d be appropriate.. 😂now and always OBC in my heart mind.
Right on buddy. I think you do maintain a positive mind set, despite all the crap in your life. Chit happens in normal life, and it seems / feels ever more magnified/ pungent when seen through the filter of a stage 4 death sentence doesn’t it. To me , it’s a unique experience, …. croaking in slow motion / trounced by life sustaining cancer drugs … our entire life / reality changes because of it.
I hear you brother , about the sorrow and grief the premature death of a child brings. I get it. A few years ago, my grandson came out of his bedroom , Christmas morning, to see what Santa brought. What Santa brought was his mother slumped over in front of her computer screen, near the Christmas tree, already turning blue with lividity . Cold as an ice cube. My daughter, Melissa, was only 36 years old , she died of “ suds “. Sudden unexpected death syndrome. Inexplicably dead. You never dream you will outlive a child , do we ? Yuck ….😥
Anyway on that happy note I’ll move on lol. This morning , Wednesday 28th , Im anxiously waiting to see if I have to make an emergency run to Kaiser E.R. .
I started a new med yesterday at noon …. Cymbalta…. And as of about 10 p.m. last evening I haven’t had a urination. For several years , I’ve routinely had to urinate every 1 1/2 to 2 1/2 hours 24/7. As of right now , I’ve only gone twice since yesterday evening …. About 1/3 normal volume and it’s real dark …. I figure I’m currently down / missing 7-8 urinations, retaining over a quart + of urine ,….. somehow….., that I wouldn’t normally have inside me. And it’s racking up fast as the hours fly by. It’s a waiting game, I’ve messaged my pallitive care Doctor …. Just biting my nails …waiting.
Wow …. We’re brothers more than we know sometimes… aren’t we ??? lol
Sorry for being so directive. I had two frantic trips to the ER with retention issues. The staff put the fear of a burst bladder into me with their stories of infection. Even with the cathetering my bladder was stretched and it took a few months to heal. After the second trip I started self-cathing to prevent any further injury. That continued for several months
about 10 a.m. I had contacted the clinic and notes to my busy palliative care doctor ….. then the river started to cut loose. Obviously the time release cymbalta started wearing off and flood gates commenced lol. I produced 10 times more urine between 10 and 12 a.m. today ….. in two hours than the previous twelve hours. Man a smile of relief flooded over me …. I was never so happy to be peeing my bladder out rotflol. Plop plop fizz fizz , what a relief it is. 😂😂😂
TinMan, I was on a 3-month schedule. I really struggled with psycological SE's a few days before my implant, and for a week or more following each implant. The mental SE's got worse with each cycle until 2.5 years in when I felt like my emotions and mental processes were deteriorating to the point that I was willing to stop treatment rather than continuing to fight with the SE's.
With Firmagon i still have some mental SEs a day or two before the treatment and for a day or two afterwards, but the SE's are significantly less debilitating.
I have taken monthly lupron since day one, 26 years ago! I inject myself now as easy to do as into belly fat. Practise with your nurse or doc and learn to do it. Lupron can be kept for two months out of a fridge, so you can keep it in the fridge until an hour or so before injection, or days before.
The idea is for you to keep control over your disease and have Input into your treatment!
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presciption names
change in meds?
LUPRON vs FIRMAGON: Is The Debate About Superiority Over? With the December FDA approval of Relugolix the debate may now be moot
Worry: Running Bounces Degarelix Stomach Depot
