I’d like to trBAT a but Dr. Danmeade requires a visit to Maryland. I live in SoCal and this does not work for me at this point

[SViking]

Currently stage four metastatic castrate resistant with multiple failures from robotic surgery to proton, SBRT, eclipse trial, Orgovyx, Provenge, and finally one recent SBRT to hit five spots from my upper spine, ribs and hip. My PSA is still low. but starting to go up from 1.2 to currently 2.5. Dr Kishan at UCLA says too dangerous for more Radiation. Given that my PSA is still low and I feel pretty good on the Xtandi monotherapy while exercising like a madman I’d like to know if there is a doctor in Southern California who would do the BAT trial.

[Roxysdad]

Doctor Rena McKay and Doctor Tyler Stewart at UCSD San Diego are familiar with BAT and are expert Prostate Cancer Oncologist…,Dr Stewart is my Oncologist…I’ve been on BAT…,For me, it’s a game changer for QOL..,,Yes , after 7 months on BAT we’re taking a break due to rising PSA, but soon as it’s down a bit I’m requesting BAT again…For me QOL is more important than quantity…..

[SViking in reply to Roxysdad]

Thanks. Is this covered under Medicare?

[Roxysdad in reply to SViking]

Yes….I have Medicare and Anthem…

[SViking in reply to Roxysdad]

Thanks. What kind of ADT were you on before starting BAT and during?

[Roxysdad in reply to SViking]

The dreaded Lupron…,I let my 3 months injections of Lupron run out (took 5-6 months for a 3 month shot to run out).., No more Lupron or any ADT for me.,,,Just gonna do BAT or possibly TRT.,..I have a little different view of things because I just turned 86 and have had a great run,,,,If there was a cure and I was younger I’d go for any and all new “fixes”.,,but at this point I want QOL….I considered Pluvicto but the reward was not worth the risk so I passed,,,,During my 10 yr battle with this crap I never felt better than when I was on BAT.,,,Good luck my friend.,,,Lemme know how things go

[cesanon]

Denemead has the most experience.

Pretend it's important and travel just to get his opinion.

By your age you have probably spent more on plumbing than this Will cost.

[Roxysdad]

if you haven’t seen it , Google Bryce Olson “A patients story”…,very informative , read and watch the vid….Bryce was a patient of Dr. Makay at UCSD….He passed a couple of years ago but was not afraid to try new things…..I admire that.,

[SViking in reply to Roxysdad]

When you say you’re stopping ADT and just doing BAT, what exactly is that? Do you still cycle on and off ADT then back on high testosterone? And if so, is that a second generation med used between testosterone cycles?

[Roxysdad in reply to SViking]

I think the normal procedure when using BAT is a couple of months of BAT then stop and do a couple months of ADT to get the PSA down..,.And I think some just keep going with ADT while starting BAT…For me, I just am tired of being tired using ADT….But my thinking is different than most.,,.Most oncologist will want you to continue with ADT Id think….

[Mascouche in reply to Roxysdad]

I think you might be confusing BAT with iADT (intermittent ADT).

When you do BAT, you are also on ADT during that time but at some interval, you inject Testosterone. It's that combo that makes it Bipolar Androgen Therapy.

With iADT, you stop ADT when you reach nadir, then when the PSA reaches a certain level, you start ADT again. So sometimes on ADT, sometimes off ADT, which makes it intermittent.

Hope this helps!

[SViking in reply to Mascouche]

I’m currently on enzalutamide monotherapy but had to cut the dose in half because of severe side effects. I feel really good but PSA is creeping up. Is enzalutamide approved for BAT?

[SViking in reply to Roxysdad]

How much extra time do you figure this buys you?

[Roxysdad in reply to SViking]

No way of telling…everyone’s different and it might not help at all…I just know it gave me QOL…at least for a while.

[SViking in reply to Roxysdad]

If or when BAT fails, what are your options? Back on chemo?

[Derf4223 in reply to Roxysdad]

When someone is "willing to try new things", ideally the new things help. If they don't you've effectively donated your body to medical science.

[Roxysdad in reply to Derf4223]

I guess that’s the chance you take….Especially if you’re running out of options…

[SViking in reply to Roxysdad]

How much more time did he buy by using BAT?

[Roxysdad in reply to SViking]

He was a young guy and I think he was only 53 when he passed….you can find his obit with google….then see when he started by looking at his post “A patients story”….Bryce Olson.,,Everyone’s different but his must have been very aggressive…..

[Worked_the_World]

I am cheering for much extra time for you. You fill the moments with great activities. I am with you, man.

[Roxysdad]

my journey.,.10 years ago…PC discovered…Gleason 7…28 proton beam treatments…2 years later more PC ..,,20 more proton beam treatments (small “spot” discovered outside the prostate).,,,year later Metastasis….Put on Lupron and had 9 rounds Jevtana Chemo…During the next 4 years 30 proton beam treatments on “hot spots” …spine, ribs…While still on Lupron started BAT….A man needs testosterone to feel like a man….Energy , libido, etc..,,Did 7 months of BAT with NO more Lupron added….So here we are…I’ve had no ADT for 7 months and my PSA is high (now at last labs a month ago 81)..,,when metastasis first discovered 4+ years ago was 196…next month im doing 10 more proton beam treatments on “hot spots”..,,Seeing my oncologist next week and going to request some form of testosterone.,,,either BAT (400 mg every month) or TRT.,,Am I throwing in the towel?..,,Probably, but this opponent just can’t be beat, and I want QOL with what times left…..

[SViking]

Good job brother. What is the option if BAT fails?

[Roxysdad in reply to SViking]

BAT’s not a cure…There is no cure…Nobody can beat this F-ing disease.,,You can fight hard and hold it off, but I guess I’m a realist and realize the clocks ticking.,,,I want a better QOL with the time that’s left and any form of testosterone BAT ot TRT will give me that..,

Give

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