An update to our RO visit yesterday, we met with the radiology oncologist to review the PSMA Pet scan and talked about external radiation but kind of pooh-poohed the SBRT asking my husband do you want a hole in your rectum? He seemed to suggest he start Zytiga and see how it goes for now! PSA still low at .20
My husband does have the option to get radiation now or to wait, Prostate biopsy coming soon may give more information, is it risky to wait and not treat with radiation now? We need some information please from someone who has had SBRT and how it went for you, thanks so much
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Keeper70
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I finished 44 treatments this last summer (check my Bio). I like my RO and his team very much. His clinic is in mid-north Scottsdale Az. Please let me know if you would like his info. Andy
He’s one of those straight shooters tells it like it is which we appreciate but it’s was our first time meeting with an RO, 27 yrs experience, ya think he’d be more open to SBRT
If he has had more than 3 bone metastases, there is no benefit in having SBRT or any other kind of radiation to his prostate. Why put him through any side effects if there is no benefit?
Hi TA , thank you for sharing that. As far i remember, 3 bone Mets , several LN, but they called him oligo. My husband does not want radiation, want to see how adt+zytiga/ Pred works for now
There is a chance that your husband is still curable if he is oligometastatic. Radiation could kill the cancer and he could be cured. Don't miss that opportunity. Your RO in a centre of excellence could give you the best advice.
I did not know that it was not supposed to be used early on. We were at a research hospital and they were doing trials for Lu177 with early disease (something that disqualifies my husband who has mets in several spots).
In a clinical trial setting they would use 6 Lutetium 177 PSMA infusions just to "kill" a 17?mm (I can't recall) or so PSMA positive lymph node and call him "high" volume cancer.
I had IMRT 8 years ago, I’m G9 and had mets throughout my skeleton and in several nodes. My RO radiated my prostate (debulked) and got as many nodes as he could. I had the same type of comments from my urologist about harming my intestines etc. my RO was skillful and excellent and I had had no issues from it. I also have been on ADT since dx, Lupron, Xtandi and Avodart. My PSA went to undetectable and stayed there for 6 years or so. Last year it became detectable again although still very low. I’m getting a PSMA scan later this month and the plan is to use SBRT again depending on what the scan shows, that game plan is per my MO, doctor Sartor.
The urologists know that if you kill the cancer in your prostate and in the surrounding Mets than you will probably not need his service down the road. You will not need to use the catheter as a result of no cancer in your prostate.
TA also said that you could potentially prevent urological issues with radiation therapy to the prostate.
I had the very precise SBRT of my prostate with 1mm accuracy guided with MRI in real time. I don't expect to have big problems. I hope that I will not need a urologists after that radiology treatment.
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