Heading down hospice road too… - Advanced Prostate...

Advanced Prostate Cancer

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Heading down hospice road too…

LJGD profile image
LJGD
10 Replies

I’m so sorry to hear about your dad 😢 I’m in a very similar situation with my dad, age 71, Gleason 9 with Mets to bone, lungs, lymph nodes and now a tumor in his bladder. Zytiga worked for him for years, but last January started with more bone Mets and lymph nodes, zytiga restarted and failed. Tried 3 rounds of chemo in the fall that failed. Radiation to spine and hip in December 2023 helped with the pain. Next step was Lynparza (olaparib), started January 5 which left him a zombie, unable to eat, drink and it severely dropped his hemoglobin. He ended up in the hospital after 3 weeks on it for a blood clot in his leg and blood transfusion so olaparib was stopped. He was so weakened after the treatment and his lymphedema in both legs worsened tremendously on the olaparib that it is difficult for him to walk. He too has fallen out if bed multiple times now and has no strength to get up on his own. Thankfully my husband and I live nearby so my husband can lift him back up. He feels he can’t even complete the PMSAscan which is the next step to do pluvicto. He tried a couple weeks ago and had to stop due to pain. He is ready to be done with treatment. Unfortunately I believe hospice is where we are heading too. I will be praying for your dad and your family. Watching a loved one suffer like this is so hard. My dad was an active farmer less than a year ago and now he needs help with everything. Lord have mercy on your dad. 🙏🏻

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LJGD
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LJGD profile image
LJGD

This was meant to be a reply to another post from 13 days ago about someone’s dad doing hospice, but now I cannot find that post…..

WisdomSeeking profile image
WisdomSeeking in reply toLJGD

I think you mean this post: healthunlocked.com/advanced...

LJGD profile image
LJGD in reply toWisdomSeeking

yes that was it! Thank you!

MyDad76 profile image
MyDad76

I'm sorry to hear about your dad. I'm not much far behind with my dad. My dad also has tumor in lymph nodes, bladder, bones, lungs. It is excruciating to see our heroes weakened, having trouble to do basic daily tasks. And to see them suffer. If breaks my heart. Lord have mercy on all of us. I just don't want my dad to suffer. I have come to term that he is going to die of prostate cancer, now I just pray that he would not suffer. We must be strong for our loved ones, they need us to be strong. But is truly breaks my heart every day seeing how he is becoming weaker.

Tinuriel profile image
Tinuriel

Praying for you both today that you find the strength you need. Thank you for loving these men well.

Wolfee53 profile image
Wolfee53

I too am praying for your father's, I was on Zytega for 2 years until I had a stroke. So I am on a vacation from Zytega and Eligard currently. So far my PSA has been undetectable. I get tested every 3 months. While on the 2 drugs my testosterone was basically recorded as less than 5. I was extremely tired, not sure if it contributed to my stroke or not. My testosterone levels have increased dramatically, I'm praying my PSA stays undetectable. God bless you!!

j-o-h-n profile image
j-o-h-n

I hate this......... I hate that.

j-o-h-n

ellie2211 profile image
ellie2211

my dad too is worsening rapidly. We are going to try lynparza... He is already anemic...but hoping it beats down the beast again.

LJGD profile image
LJGD in reply toellie2211

Praying he has good results from it 🙏🏻

ellie2211 profile image
ellie2211 in reply toLJGD

Thank you, we can use all the well wishes

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