AUS revision surgery?: I'm seeking... - Advanced Prostate...

Advanced Prostate Cancer

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AUS revision surgery?

allnewstuff profile image
7 Replies

I'm seeking advice on having a second AUS surgery. My background: I had a prostatectomy in 2016 and radiation a year later because the cancerous tumor had penetrated the sack. I have since had undetected PSA but have suffered with severe stress incontinence. I had AUS surgery in 2018 but it failed because of erosion. The ensuing three months were the most painful of the journey because I had an indwelling catheter that not only leaked but caused great pain. I am told I'm a candidate for a second AUS surgery, and I'm looking for suggestions and personal experiences. I know the radiation and previous AUS surgery could be odds against success. Please let me know your thoughts, and also any suggestions how members deal with incontinence.

Thanks much,

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allnewstuff
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7 Replies
Bdale profile image
Bdale

I am having incontinence issues due to the prostatectomie in 2019, I use pads and am able to live with that. I decided against AUS because of all the potential side effects like you are having . Sorry you had to deal with that, be well.

allnewstuff profile image
allnewstuff in reply to Bdale

Thanks for your kind reply. My incontinence is severe enough that pads simply do not work - I would need to change hourly. I find the most relief with external catheters, which allow me to leave home and live a somewhat normal life for which I am grateful. I'd love to hear how others handle severe incontinence. Thanks again for your thoughts, suggestions.

Break60 profile image
Break60

my AUS turned out to be a disaster. Had to be removed after nine months due to severe sepsis. Since then I’ve had a foley but I get leakage anyway. I go through probably 8-10 pads and 3-4 diapers a day.

allnewstuff profile image
allnewstuff in reply to Break60

Very sorry to hear what you've gone through. Mine was removed after only a month because of severe erosion, although avoided serious infection. I had a foley for three months while urethra healed (usually it takes one month). It was a miserable time. Pain and leakage just as you are experiencing. Will your foley be removed at some point? Hoping it's not permanent.

Break60 profile image
Break60 in reply to allnewstuff

I don’t see how it will ever be removed. It would just increase the number of diapers and pads I’d need. The only thing I might do is remove it and see if it cuts down on the chronic UTIs I experience. They’ve put me in the hospital four times.

garyjp9 profile image
garyjp9 in reply to Break60

I am also sorry to hear what you have been and are going through. While not as bad as yours, a lot of men seem to have problems with these. Hang in there.

j-o-h-n profile image
j-o-h-n

It all depends....

Good Luck, Good Health and Good Humor.

j-o-h-n

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